Hi to all, I am new to this site and am overly pleased at the response of the occupants. I didn't know about the introduction thing and started off on the wrong foot I guess for which I am sorry. I almost severed my spinal cord between c5&c6 over 19 years ago by a bone spur. I had the operation and fusion of course and also got rsd from the initial impact of the fall they "believe"? I have numerous nerve damage, rsd in both hands/arms and they it slid down to feet about 4 years later. I have been on all narcotics in the field known to medicine up till Jan 30 of this year. I got off methadone on the 30th and then I really knew what it did for me. in two months I lost 40lbs. I am scheduled for the neurotransmitter for the thoracic first and the cervical later. That's my story and I'm sticking to it.....

Hi Krow,
Welcome to the forum but sorry for your reasons to be here.
We're a friendly bunch and as you probably already know, a good place to vent, get info or just chat.
Everyone here has given me great support and at times just let me ramble on(LOL).
Talk to you soon...

Thank you Russel, this is new for me as I have kept to myself pretty much except for rehab hosp stays. I appreciate your kind words and have seen and felt the great support here so soon. It is nice to be able to compare notes and read about others that are suffering with some of the same type of symptoms of rsd/crps. Best wishes to you and yours also and may your days be loaded with peace and comfort. Catch you on the rebound.

Welcome krow! You have come to a great place for support and info. Sorry you have to deal with this horrible monster.

You said you were getting a neurotransmitter...is that the same as a spinal cord stimulator? I had two St. Jude's SCS's implanted (cervical and thoracic) at the same time for in 2011. I just recently had them both removed since I was having issues with them. They did help me a great deal for about a year and a half.

I am also in VA, Richmond Region. Where about in VA are you?

Nanc

Hello Hello Nanc, Am I glad to hear from you. I was going to reply to you next after I got things straightened out with Vrae. Yes to your question about the neurotransmitter. That is the "new" name for them and this one is made by Medtronic out of Minnesota. I guess scs isn't good enough any more like rsd is now crps which is the same thing. I will need both as you had and they tell me they are good for six years now if no problems. My injury was between c5 and c6 I almost severed spinal cord with a bone spur from a fall. I don't remember much as I was out for quite a while. My son saw the whole thing. They think the impact caused the rsd, who knows?

Thanks to you and others I have listened to in forums I think I may go with the infusion pump instead. I need the my feet done first .

How about you ? Are you still having the bad headaches? I hope not. I have read some of your posts and can see your struggle is not an easy one. Your plate is surely more than full. As with others in here I wish I could absorb some of your pain and make your day much brighter. It sure is a miserable affliction isn't it Nanc?

I hope the headaches go away and I live in Newport News and go to the VA in Richmond McGuires Veterans Hospital on Broad Rock Ave......exit 69 on I-95 South. They will do the surgery or farm it out in Richmond.