Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-08-2014, 12:36 PM #15
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Join Date: Jan 2011
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
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Quote:
Originally Posted by Lottie View Post
I understand, Nanc. My husband is a gem too. But, I sense sometimes that because he feels he can not make it go away, he feels helpless and sad. My teen daughter is wonderful too, but I try to keep her life as normal as I can.

Other than that, I have no family anymore. And, when I had to stop working I lost all my workplace "friends". Gosh, that's been hard for me.

Anyway, I get it. Keep talking with us here. I'm worried about you feeling like this is all just too much.

~Lottie
I understand what you are saying about your husband too Lottie. I think it really bothers mine that he can't really do anything to help my pain. My husband was born with cerebral palsy, which affected his right side. His right arm is drawn up so he can't really use it and he can't use his right hand either. So, with that he can't really cook, I mean he can heat up stuff but preparing meals is near impossible for him. I have to prepare meals so I do easy as possible stuff. I have dietary restrictions, which adds to the difficulty, because of gluten intolerance, pork, fish and shellfish allergies and a special diet for IC. Not so easy for him to pick something up on the way home from work. Very frustrating!

I thought I had a few work friends, but when I stopped working Dec 28, 2012 not a single one of them gave a crap. I was with this company 9 1/2 years and when others had minor things happen, everyone was there for them. When I left out on disability - nothing! Well, I got a card that some of them signed, but that is it. My supervisor had a hysterectomy and they collected money for meals and she had MANY visitors. Her husband does most of the cooking for them and her mother was there too. It was like that with others too and it just hurt my feelings that after all I gave to that company, they didn't care one bit about me. I lost other "friends" too. At least I do still have family and I will see some of them this weekend for my niece's bridal shower. But, I hate to call crying to them when they all have their own families and issues to deal with.

I appreciate your concern and for listening to me I have had moments like this, but this time it seems a little worse and a little more overwhelming. I am trying hard to take my mind out of the dark place it is in. It is all too much for one person to deal with. I just wish there was at least something I could take to help my pain, even just a little bit.

Sorry, I am rambling on here. Thanks again for listening!!
Nanc
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