Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-12-2014, 03:25 AM #21
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Since I gave away my age, and how large my family is....I decided I would share a video my daughter and daughter in law made for me and the wife a couple years ago.

I am going to remove it from facebook, but decided I cant take it down before my friends here at NT get the chance to see it.

I hope you enjoy it

https://www.facebook.com/photo.php?v...type=3&theater

I made the video public so everyone can enjoy it....even those without Facebook
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anon6715 (05-12-2014), AZ-Di (05-14-2014), Brambledog (05-12-2014), Lottie (05-12-2014)
Old 05-12-2014, 01:31 PM #22
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Thank you for sharing your video, Allen. Beautiful video. Beautiful family.
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Old 05-12-2014, 08:41 PM #23
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You guys are awesome Allen! Best wishes to you and your family. And, nice fro dude
:-)
Thanks for sharing with us. I recognize some of that California coast in your pics. We visited there in 2010, right before I got sick. -lottie
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 05-12-2014, 09:12 PM #24
MDinpain2 MDinpain2 is offline
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Default Lyrica and sex

Yes I've been on Lyrica and opiates for 3years and it's totally ruined my sex life I have chronic pain from a saphenous nerve neuropathy in my knee post surgery I found my libido went to 0 , plus I didn't feel like initiating sex with my already overburdened wife looking after me and the loss of a husband bringing in the income in the family. Anyway, I finally realized that one problem was the opiate side effect of lowering testosterone levels (mine was near 0) so supplements have helped that.
The other weird thing was the parasthesia I would feel on urinating and ejaculating . The neuropathic pain in my knee still fires off when I empty my bladder and orgasm is sort of nice but hard to do and not pleasant anymore ...an almost electrical feeling . Very strange stuff. So we thought it might be the Lyrica or my neuropathy has set up some kind of weird feedback loop with my lower spinal cord and my sacral nerves. Not exactly text book medicine.
Anyway I am currently at half my previous Lyrica dose a month ago...pain no worse but no changes in weird symptoms mentioned above.
Anyone else had any experience similar or has advice on weaning off Lyrica?
I am currently on 75mg bid and methadone 12 mg qid. I am currently waiting for a PNS trial after failing 2 SCS trials. After that my last kick at the can seems to be DRG stim (dorsal root ganglion) stim. The Axium stim mentioned above I believe is the trade name for the DRG trial in the US that I cannot participate in because I am in Canada.
I found all your posts very helpful
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Old 05-12-2014, 11:04 PM #25
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Quote:
Originally Posted by MDinpain2 View Post
Anyone else had any experience similar or has advice on weaning off Lyrica?
That might warrant a thread of its own, as this one is specifically about gabapentin. If you check the archives, there are several (current) threads about Lyrica withdrawal and tapering off of it in various groups.

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