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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Senior Member
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Hi all!
I dont get to visit very much anymore.....just soooo busy! Actually I spend about 75% of my time on my bed due to the dastardly RSD! But even though it keeps me down more then I would like, I fight the RSD and get out and go after my passions in life. Luckily my partner, and host of our show, keeps an eye on me. He is always making me go sit down, and wont let me do to much. It is really cool to find friends that have the same passions, and also understands the limitations of RSD. Plus my doctor comes out and checks on me when we do these bigger productions.......just having him show up and ask if Im ok, or need anything is a great comfort. Lots of times they have no idea how bad I am hurting.....and I wont tell because I dont want to be sent home ![]() We started doing a once a week streaming show on the paranormal about 4 years ago for fun. It is really fun, and it isnt to taxing on my beat up old body LOL! Then a few months ago we were contacted by Art Bell!! I am still reeling from that lol, but he asked us to join his Dark Matter Radio Network!!!!! So now besides us streaming on the world wide web, we are being broadcast live by Art Bell! You can go to http://artbell.com/ http://www.paranormalcentral.net/ to watch or listen to the weekly show. But I digress. I wanted to share some pics of a Television Pilot that we taped. Thought it would encourage those that have RSD to fight the darn stuff, and try to have a life outside of the pain. It is rough, and sometimes I want to give up, but I keep thinking.....No, this stuff doesnt own me!!! So before this becomes a book ![]() Here is the link to the album http://neurotalk.psychcentral.com/album.php?albumid=661 I hope you enjoy the pics, and also the show if you happen to like paranormal stuff and tune in. But mostly....I hope it inspires you to fight the RSD. Even if you cant do much, it is better then letting it have it's way with you ![]() The pilot is in post production now, and might be a year before it is finally released to be shown to the world.....cant hardly wait, and will keep you all updated. I really wouldnt be where I am today without all the encouragement and support I received from my RSD family right here in this forum ![]() I do get in here a couple of times a month and read up. It would be cool to hear stories on what others do to try and live a normal life.....keep up the fight....RSD doesnt own us!! ![]() |
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"Thanks for this!" says: | AZ-Di (05-01-2014), Brambledog (05-01-2014), eevo61 (05-02-2014), RSD ME (03-19-2014), Vrae (03-19-2014) |
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