Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-13-2014, 04:07 PM #1
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Default About my weekend

I had a kind of nice weekend,with a lots of pain in my two knees but able to handled it,then that triggers the rest of my body,also added again that awful interstitial cystitis , well that alone Is bad ,but after all things were not that bad.
I spend time with my husband and daughter ,that makes my day no matter how bad I felt,that what's matter,be with your love ones ,today by the way is my wedding anniversary,we had been together for almost 23 years.
I never mentioned before ,in 97 my husband almost die of,a,rare condition called wegener's gramatulosis,he was in coma for 3 months,very hard moments ,but we still together.we did not had more children,now I understand why,but we got bless with the one we had together and with my stepson which is more a son than been called stepson.
we got marry in 2003 exactly a Tuesday May 13 ,for some countries the day is bad luck, for us was a normal day,we just got married and then went back to work,a normal day,but happy day like today,like the weekend,a good day as long as you make it work is always a good day,hope you had a nice day,I'm feeling much better now,but still with some pain,I will get over,for sure soon,blessings to all,from Jesika.
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Last edited by eevo61; 05-13-2014 at 04:31 PM. Reason: Added husband info
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Old 05-13-2014, 05:32 PM #2
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Glad you had a good weekend Jesika, but sorry about the bad pain.

Happy Anniversary to you and your husband!!

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Old 05-13-2014, 05:47 PM #3
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WOW! youve been through a lot! I am glad he is still with us, and you two are still together!!

Congratulations!!!

My weekend was rough! But I powered through it, and then collapsed on the bed all day Monday lol. Here is a little of what we did Saturday night! In the last picture Bigfoot is hiding
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Old 05-13-2014, 10:25 PM #4
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Jesika,Happy Anniversary and Happy Mothers day. Sorry your pain was rough. I am glad though that you enjoyed your weekend.
Allen, I really like your pictures. You and your friend look very nice. Sorry about your pain.
My weekend was uneventful. Just me and the doggies. Kids are grown and on there own in different states to busy for Mom. Hubby works the nascar circle so he was in Kansas this weekend. My pain was just that pain, up and down as far as the level of pain goes.
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Old 05-13-2014, 11:02 PM #5
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Originally Posted by allentgamer View Post
WOW! youve been through a lot! I am glad he is still with us, and you two are still together!!

Congratulations!!!

My weekend was rough! But I powered through it, and then collapsed on the bed all day Monday lol. Here is a little of what we did Saturday night! In the last picture Bigfoot is hiding
Thanks,I enjoyed watching your pictures,like I mention,is a bless to see you after such of terrifying story of survival,very impressive and inspiring,and yes,you are right ,mynhusband is still here with me for a reason ,we both are,is a bless,thanks and keep you good work ,we truly enjoy it for real ,from my family to your,blessings,Jesika
Ps my favorite picture I will say is the one with the sunset behind,a nice image,thanks for sharing with us.
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Last edited by eevo61; 05-14-2014 at 12:20 AM. Reason: Added ps.....
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Old 05-13-2014, 11:12 PM #6
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Jesika,Happy Anniversary and Happy Mothers day. Sorry your pain was rough. I am glad though that you enjoyed your weekend.
Allen, I really like your pictures. You and your friend look very nice. Sorry about your pain.
My weekend was uneventful. Just me and the doggies. Kids are grown and on there own in different states to busy for Mom. Hubby works the nascar circle so he was in Kansas this weekend. My pain was just that pain, up and down as far as the level of pain goes.
Thanks Phaedra ,sure many of us had a really rough weekend,happens but I'm glad is kind of over,I'm sorry you couldn't see your big kids ,i only called my mom ,I couldn't visit her as well,she lives nor far from me,but we don't have that close relationship like others do,we are all different,but I did call her in both days,Saturday and Sunday.
See for many Hispanic May 10 is Mother's Day in many countries,and Sunday was here,so I did called twice,she was busy doing her stuff,I was sick,so was resting more than anything,maybe she felt same way you did,I'm sorry,but in her case she likes that,she doesn't like birthdays,reunions,things like that,so whenever we can we visit her we do, but if we feel she don't wanna be bother we don't even get close,she is a serious case about that matter run for your life, ,for real,funny but real.
thanks for all you good wishes same to you and hope soon we can all talk about how well we feel, soft and gentle hugs to you as well,blessings from Jesika .
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Last edited by eevo61; 05-14-2014 at 12:24 AM. Reason: Corrected some misspellings :( as usual
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Old 05-13-2014, 11:17 PM #7
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Glad you had a good weekend Jesika, but sorry about the bad pain.

Happy Anniversary to you and your husband!!

Nanc
Thanks Nanc ,hope you feel better,I'm glad to get some improvement to,I had bad days as well ,sometimes is easy to deal with those days,some others is so terrifying .
Thank you for taking the time to stop by,next time I will have tea and scones ready,I love then,maybe one day we can share a day,we never know,blessings from Jesika
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Old 05-20-2014, 03:54 AM #8
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I had a kind of rough time for several days already,weather change so much in California ,is not helping me at all, my knees hurt,went to pm dr and reprogrammed my scs but still have pain,my buttock area as well,insurance had not decide anything on my case,is frustrating,and feels like my energy is getting low every day,I try to keep active but pain is stoping me from doing some important stuff,well ,we all know good and bad days,nothing new I guess,I just want to share my lately adventures,still pain is the name,blessings to all and hope we all get better soon,your friend Jesika.
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Old 05-20-2014, 09:03 AM #9
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Happy Anniversary!!
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Old 05-20-2014, 11:59 PM #10
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Default Thanks everybody for your best wishes,

Is been a hard weekend and week for me,the weather changes so quickly and had my body in pain,specially my buttocks where my battery was,really a pain,I try to cope with the pain in different areas but is hard,is been real hard,medications work in certain way but don't take the pain completely away,gosh ,for now I can only talk with dr by phone,insurance had not assigned a new dr yet,is a hustle still,sorry for complaint toooo much ,but is my turn this time,pain is for real and so often in the incision sites,got me crazy but I'm still battleling what I had too but is hard,sorry just want to let my emotions and stress goes away,I know you all understand and blessing to all,from Jesika .
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