I couldn't agree with you more. She really is. She's a smart cookie too.

Aw you guys are so sweet!! Thank you for putting a smile on my face this morning!

Wishing you all the best day possible!

Hi there you two sweet, kind souls. Yeah I can't reply with your text or quotes I can only do new posts for now.

Tessa - MAN you are a rock star. ROCK STAR. I following your post about your implan/pump and saw pictures. I bow down and salute your bravery. OMG. You are a leader and have amazing strength. Reading the stories here is so hard, as I was in exact same place as so many, but I also feel I am among people who get it, and I want to support others. I was on Brain Talk and other forums for many years seeking advice and giving all the support i could. I am so grateful to have met two new people who seem to be just amazing.

Jesika, thanks for your sweet words. Yeah I have never yet in 25 years, had anyone deal with my RSD in regards to surgery though I was an outspoken advocate for myself, it got me nowhere. It is so hard to actually get doctors to help. It's one thing to say that you will try and help or not to worry RSD does not usually occur in "fill in the blank ____" but to us who have RSD and get it from surgery, those statements need to have action behind them. HELP, protocols. Not treating us the way we have been. I do believe I have people in my corner this time, for the first time who may help. I would be lying if I said I was not worried, and had this weighing on me for like a million years. I always said I would take the RSD I currently have and never complain if I never had to have it in one more limb (an additional limb). And here I am facing the trauma, drama. It is really like post traumatic for me, going into war, flashbacks. I am staying positive, and will keep a good outlook but I can't fathom coming out of this with a whole other limb with full blown RSD. I was on crutches for like 7 years with the first RSD, and it's still crazy painful in my leg, and now I fear the other leg will get it. I had a bout of spread after a diagnostic hip injection, and it was unbearable. I sure don't want that to occur with my hip surgery but I know the risks. We all do.

Anyway, thank you both for letting me vent, and for welcoming back into the community after years away. I just took a walk in the park (on crutches) just because I had to live, breathe and just BE with nature even if only for 4 steps, 4 minutes or 40 paces. A big dog jumped on me and landed on my hip and it went POP CRACK BOOM as it always does, and I said, "hmmmmm guess it is time to turn around and leave." LOL. I love dogs and I could not resist playing with them. RSD or not. YA GOTTA LIVE.

Hugs to you both.

Tessa I will PM you if I figure it out and the forum lets me, lol.

You all are inspirational. WE HAVE TO FIND A WAY TO WORK WITH THIS BEAST. RSD does not own me, and frankly it can kiss my _ SS! LOL

VRAE

thanks for the post, I read through some of your posts and you too are quite a warrior and a positive influence.

TOGETHER WE can get through anything.

Nice to meet you

Tessa

You brave soul, I just thought of a nickname for you, for the moment, lol. I hope you take it in humor, as I can be silly.....no offense meant at all. You are so strong it seems. YOU WILL TERMINATE YOUR PAIN. lol

TTT Tessa the Terminator. Kicking butt and making a path as a leader! You are determined and never give up it seems. I get that. I am sort of the same way, I don't give up, but I don't think I have half your bravery girl.

YOU ROCK,

Hi Burnbabyburn,
I'm really proud of you for try and fight so hard,you mention a word that for many have no meaning for us is all , Faith, keep going forward !enjoy every single day fighting and getting your steps far from being defeated .
Rsd don't have to be our boss and rules our life's,we can all help each other offering a shoulder,a hug,a hand ,cry together and fight together .
I'm still pending for a surgery on my right foot to fuse my bones ,rsd had put an stop to any plans ,dr don't want to do it,me,me want it 100% so I can deal only with the neuro pain!I have an spinal cord stimulator !it should be taking care of all my pain!but doesn't work for bone to bone pain,sucks, but it is what it is!I can only hope one day to be able to regains my full mobility back.
I hope you are feeling and getting much better,I will provide you with a link for rsd info,you might know the site already ,but still I will added jus in case,blessing and wish only the best ,your friend Jesika .
you make me feel special,that makes my day,thanks!

http://www.rsds.org/index2.html

Thanks much

Sorry I thought I replied to this. I have been all over the boards lately. Appreciate your support and no RSD does not have to own us, but it sure can be boss us around sometimes, lol. Yes we are here to help each other for sure. Sorry your pain is so bad, I have always been way to fearful for SCS or pain pump due to my horrible reactions to any surgery. I hope you have more relief soon.

I have an actual consult next week with the anesthesiology dept where I will eventually have my surgery. I have so much weighing on this moment and conversation. 25 years with RSD and constant struggles to get any help around surgery so this is MY chance and I can only pray they are willing to help me out and work with me. This RSD and surgery issues has been my black cloud for so long, and i have had such bad results from surgery that I need and want this consult to go well. FINGERS CROSSED

hugs to you and thanks again