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Soft hugs for you. I am so sorry you are having such a hard time. WE do understand and are here for you. I wish I could send magical treatment right now.

Nanc,thanks I know you are doing a huge effort to be here,everything will be fine soon,thanks I know you are here no matter if you don't reply,don't worry I hope also you get better soon,we both will be, many gentle hugs.

That is the a new phrase I will treasure in my heart,a magical treatment,I wish that so many times,I can even imagine how life will be without your support,being here is relief,thanks and welcome,sorry you are dealing with this condition as well,we are fortunate to know so many great people,but sadly share the same disease,there are days like this,but I want to believe all the time that tomorrow will be a good day,I really need a good day,thanks so much,blessing and also gentle and soft hugs for you as well,Jesika.

I'm sorry things are so bad for you right now.

Some times a good cry helps me get the frustration and anger out.

Aw, Jesika, I'm so much hoping for you that some relief happens!

Shelly,Di and every one,I was hoping to be okey today,I was alb to sleep but woke up late ,real late and as the day goes by,my pain increased ,reason is I'm really nervous and have a lots stress on me now,I noticed that and I want to be able to relax but I can't ,I tried but simple can't ,my whole body is on fire feels like knives cutting me and sweat getting up into my skin,hurst,my onwn touch hurts,tomorrow will see my pm dr and see what he recommended to do.so far neither meds or scs helped at all,but I hope got get better soon ,dawn I wish to be ok,at least no burning just the pain,thanks to all,I do appreciate it so much,is bad day but soon the sun will shine again,it was suppose to happen after te rain ,isn't it.thanks.

aww.. Jesika I'm so sorry that you are hurting so bad hon. that is just just terrible. I do know the pain you speak of; when you feel as though your body is a torture chamber. Just know that some how, some way... it will pass. Hang in there hon! I hope it passes quickly and if not I hope you're PM has something to help you! Try and find some sort of distraction if you can. Maybe even a hot bath? Be good to you!

Oh Jesika, I do hope you feel better soon. I saying prayers for you. Hugging you softly

Vrae and Phaedra ,girls I appreciate so much your concern,yap been rough lately,I'm in so much stress and pain added more stress.hot shower unfortunate is not for me,my scs got my body hot enough if I take too warm water showers,I flare up more,funny story,I take showers to cool down and get rid of sweat and I ended showering on sweat after any bath,so make no sense,weird,I should avoid water and save the planet ,hahaha , thanks for lift me up,I always keep you in my mind and also prayers ,thanks to all ,from Jesika .

Ps shower but of sweat,

Have you tried Valium?

My PM doctor has me on it as 2 fold. It helps to relax muscles when they tighten up and it helps me with anxiety and stress. I'm on 5 mg once a day twice if needed. I take it in the AM. If I find myself getting anxious and worked up I take more. It seems to help.