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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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I didn't do all of these things at once. The regimen constantly evolved. It's the reason I called the outline "Dynamic Adjustment." Since it's a summary off ALL the things I did, I couldn't see a way to quantify what I did when, for how long, and how they overlapped. I could, however, specify what I think was most important now based on hindsight. I was blessed by the fact that I had hundreds of sick days built up as a result of a 10+ year career at the same company. And a sympathetic boss. And a loving family that let me get as weird as I needed to be. I will say that I was absolutely 100% obsessed with healing and it consumed the majority of my waking thoughts. It still does. The most important "cure," ironically, did happen all at once. I woke up at 3:30am one morning to discover that my whole leg was "mine" again. The pain was completely gone and has never returned. Took a picture of it with the flash of my iPhone in the dark. I still had residual symptoms after that, but they were much less intense and resolved over the next 6 months. I'd be more than happy and honored to go into more detail on any specifics on the Why and When and Where and How versus just the What. Absolutely anything I can do to help. Last edited by Chemar; 06-15-2014 at 07:53 AM. Reason: corrected quote tags for clarity |
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"Thanks for this!" says: | Jimking (06-17-2014) |
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Just have to say...
![]() No one can be 'in remission from death' lol, as no one has been dead and then not been dead! The point is that you had CRPS, but now your symptoms have resolved. My point is just that I believe 'cure' is a strong word. We are all searching for a cure, and your list, while very helpful and interesting, is the kind of list that any one of us with intense CRPS symptoms might try to follow and still not find the results you have... I'm not saying its not useful - it definitely is - but a cure is a treatment/s for a condition that works on anyone with that condition. I suppose I'm trying to say that there's a lot of desperate folk hoping for a cure.... Wishing us all a cure one day ![]() Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | anon6715 (06-15-2014), fbodgrl (06-16-2014), KathyUK (11-27-2014), Nanc (06-14-2014), visioniosiv (06-15-2014) |
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When I was first diagnosed with rsd, I asked my pm dr if it was curable. He said yes. I was so happy to hear this! Then I went home and did some research on rsd to educate myself on it. I found nothing saying that rsd was curable. I only saw that it could go into remission. So I went back to my pm dr and asked why he said rsd was curable when everything I read said the contrary. He said that if someone has rsd and then goes into remission until they die, then it's the same thing as being cured. Needless to say, I don't see this pm dr anymore. I don't believe he was honest with me and I don't trust him because of this. If rsd goes into remission until I die, it does not mean it is cured. It means it went into remission until I died. To me there is a big difference and I just needed to express my point of view on this subject. I do appreciate you trying to help offer your point of view on this thread though vision. I know you're just trying to help. Thanks.
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RSD ME . |
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"Thanks for this!" says: | Nanc (06-15-2014), visioniosiv (11-26-2014) |
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Hola Renee.
![]() Point taken - we all have different perspectives and I totally respect that viewpoint. For me at least, it was very important to make the distinction between remission and full recovery. For me, even the act of thinking about recovery in terms of "remission" rather than being fully cured carried with it a fear of future outcomes. In fact, to help train my subconscious, I carried about all day long with the mantra "I am already healed - act like it" in my head on repeat. Words - spoken and unspoken - are vibrations that have power whether we are aware of it or not. But yeah - Obviously I'm still working on that awareness part! In particular, the word "cure" has a lot of loaded meaning relative to the context of this forum that I could've been more cognizant of. It would be nice to be able to change the title of this thread to "The Crap I Did to Fully Recover from RSD." Or just "Things I Did to Fully Recover from RSD." But keeping my sense of humor was one of the things that helped me personally, so CRAP it remains ![]() Thanks for your input it always makes me think ![]() Last edited by visioniosiv; 06-15-2014 at 11:41 AM. |
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"Thanks for this!" says: | RSD ME (06-15-2014) |
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Hi again Vision. I like the title of your thread. It made me laugh and a sense of humor is always good to have especially when one has something like rsd to have to live with every day. Thanks for your list of things that helped you. I will have to try some of them. It can't hurt. Take care my friend. From your friend, Renee.
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RSD ME . |
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"Thanks for this!" says: | visioniosiv (06-16-2014) |
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#6 | |||
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![]() Anyways Bram you know how much I respect you and all the light you bring to the people here ![]() ![]() Your post is spot on by the way, and I intended to address it in responding to Renee's post above. |
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#7 | ||
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Quote:
![]() Bram.
__________________
CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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