[Burnbabyburn]

Hi
I appreciate any advice or soothing words anyone has. I have RSD left leg and left arm and am having hip replacement surgery on RIGHT leg. My RSD has been contracted both times from surgery, directly.

I met w/the anesthesiology dept. last month to talk about RSD, pre-during, post op etc, other things I have going on, and they seemed very willing and on board to do a lot to help me. Now the closer it gets, they are backing off and saying what they are NOT going to do. Each step they take back, really makes me uneasy and lose a little faith in their word. As I pushed to get some things in writing, they are pulling back. While they will be doing spinal epidural and regional anesthesia, they said they will not block any sites/body parts/area to reduce risk of spread. So they won't block my arm, at all.

When I was in the consult, they were very tuned into the blocks. We talked about it in depth, now, they won't be doing ANY! I'm exhausted going through this every time, and being an advocate for yourself seems to really upset them. What seems possible and helpful then turns into NO we are not doing that. Am I alone here, been fighting this for every surgery, and just don't get it. The hospital/anesthesiologist said they are not familiar with those blocks? Really? What if I was having upper limb surgery again? Sigh. I don't want to be a pain, nor dramatic, just want to protect myself, as not protecting myself has only led to RSD.....you know? I do feel alone in this battle when it comes to doctors and surgery, they want to help but are limited it seems. Or am I asking too much? Is it me?

Thanks