Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-13-2014, 09:11 PM #1
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Default wake up with body on fire

does anyone else get this. It was caused by a brain injury but every single time I wake up I wake up to vivid dreams and severe body burning from head to toe. Any suggestions thank you
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Old 07-14-2014, 01:33 AM #2
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Originally Posted by markneil1212 View Post
does anyone else get this. It was caused by a brain injury but every single time I wake up I wake up to vivid dreams and severe body burning from head to toe. Any suggestions thank you
Since my rsd flare up ,I was having a lots,of sweating and pain with the fan,the first think I did was bought blankets with the temperature fresh or cold , Ikea is the place where they specify I their product the level of temperature and also add under the base of my mattress cover a cooling pad I bought I the medical supplies , also,keep I hand the spray from gold bond with the fresh scent just into refresh your skin avoid the one with menthol,,also poise are pads for ladies and came lately with cooling wipes for your body ,real nice sensation but about private parts, I once get them mistake with baby wipes and had a moment on hell.
I know rsd is so difficult to handle ,one day is always a new thing ,try the best and get informed,I hope this will help you,remember the bed need a cooling pads under the mattress cover and your own cover need to be with a temperature comfortable for you, ikea for sure is the place and hope you have one around but also can shop I their website.
Wish you get more comfortable and able to reduce the flares every morning ,gosh I did at the beginning every single thing I imagine will work and spend some money for it but conform is priceless !!!
Blessings and gentle hugs ,with love Jesika .
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Old 07-14-2014, 01:43 AM #3
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Originally Posted by eevo61 View Post
Since my rsd flare up ,I was having a lots,of sweating and pain with the fan,the first think I did was bought blankets with the temperature fresh or cold , Ikea is the place where they specify I their product the level of temperature and also add under the base of my mattress cover a cooling pad I bought I the medical supplies , also,keep I hand the spray from gold bond with the fresh scent just into refresh your skin avoid the one with menthol,,also poise are pads for ladies and came lately with cooling wipes for your body ,real nice sensation but about private parts, I once get them mistake with baby wipes and had a moment on hell.
I know rsd is so difficult to handle ,one day is always a new thing ,try the best and get informed,I hope this will help you,remember the bed need a cooling pads under the mattress cover and your own cover need to be with a temperature comfortable for you, ikea for sure is the place and hope you have one around but also can shop I their website.
Wish you get more comfortable and able to reduce the flares every morning ,gosh I did at the beginning every single thing I imagine will work and spend some money for it but conform is priceless !!!
Blessings and gentle hugs ,with love Jesika .
thank you so much for the reply and all the helpful hints. really appreciate it and will try some of them
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Old 07-14-2014, 01:25 PM #4
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I had a lot of burning in my leg when this started 3 years ago. But, now it mostly feels cold & is reactive to anything that feels cold, like water that is too cool in a swimming pool. Sometimes, I do have burning in my leg when I first wake up, but it goes away most days when I start moving around. Also, my leg burns when I have a viral illness.
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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