Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-29-2007, 12:25 PM #1
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Hey Beautiful,

I was wondering how you are making out. I was hoping you were on Holiday laying on the beach, on some tropical island.

Much Love, Roz
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Old 05-29-2007, 11:08 PM #2
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Oh, Frogga! I actually cried while reading your post. You dear sweet one heck of a "strong Lady, you"! I want to send you much needed hugs, and prayers your way. You are going through pure hell and still have a sense of humor! Bless you, my dear! Love, Desi
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Old 05-30-2007, 12:43 AM #3
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Dear Miss F. -

The very fact that you can write such a pithy post whilst on 100 mgs. of ketamine/day is incredible. RSD pain or no, most folks would be so far down the K-hole as not to be seen for a while, but you my dear not only post but manage to stay at least somewhat focussed on your exams on Thursday!!!

You are a remarkable, amazing woman. Something I'm sure that has not gone un-noticed within your community.

Oh yeah . . . break a leg.

much love,
Mike
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Old 05-30-2007, 01:57 AM #4
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Hey Frogga, hope you are feeling better now. I sure enjoyed talking to you in chat this morning (well, this afternoon for you). We'll have to do that more often

Hope all goes well with your exams, keep us informed... I, at least, get to live vicariously through you, ya know. I haven't had much to do with the outside world for quite a while now, so I really enjoy your "college days" stories.

Hey, here's something for ya. Tell Hunky Dunky that one of your friends in the forums wants to give him a kiss for being such a good friend... but I'm in America, so you'll have to kiss him for me.
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Old 05-30-2007, 05:07 AM #5
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Default Frogga

You are in my prayers! I hope you have a better day!!!
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Old 05-30-2007, 11:19 AM #6
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Frogga -I hope a much better time for you today and forever, you are one amazing young lady!
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Old 05-30-2007, 01:20 PM #7
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Hey Mate,

You are so brilliant. I believe you will not go up the mountain in your examines you will go right thru the mountain. Love, Roz xxx
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Old 06-14-2007, 10:57 AM #8
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Default Hi Frogga,

I just wanted to say hi and to let you know I am thinking of you.

You know you really need to follow your Drs. orders to go to the hospital to be taken care of. Maybe they will be able to give you some help that the Drs. can't in their office.

I'm sorry that things are getting worse for you and hope you start feeling better really soon.

Ada
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Old 06-14-2007, 01:01 PM #9
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Hey Ada,

Thanks babe. How are you? how is the stim working out ? I have been keeping my fingers crossed for you! I hope the immunologist can help you with the CFS. I was worrying about you because you have gone so quiet.

I hate hospitals. I just re read my post and realised how down/ depressed it sounded. I guess I'm just frustrated with going downhill. Things will improve but if I go into hospital they will just make me worse. I am yet to go into hospital and come out better than I went in and I hate being prodded and poked by drs!

Love ya

Frogga xxxxxxxxx
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Old 06-14-2007, 07:03 PM #10
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Default Hey Frogga,

I do know what you mean about hospitals. I can't stay in one as long as they want me to when I go in. I have panic attacks after a few days in them. My PCP springs me from them before my time is up. He tells the Surgeons if he has to come to my house to take care of me he will. I get hysterical in them I have also been overdose with Methadone in the hospital before.

I was just thinking with you being in the shape you are in, I think you need really good care to get better. It does depend on how good the hospital is also. It sounds like you have had your share of bad experiences in them too.

As far as the stimulator, we are going to turn it up tomorrow evening. I am scared. I have put it off now for over a month due to what it's doing to my voice and breathing. I can't yell at anyone because my voice keeps going down. LOL It goes down every time the machine goes off which is 30 seconds out of every minute. I still have to have it turned up 3 more times.

I lost my magnet that turns it off and Susan found it today. I swear I can't keep up with anything. I have wiped out the color on two tv's so far.

As far as the depression, so far it's not helping but the CFS and everything else has made the depression worse.

I got an appt. with the Immuneologist next Wed. I hope they can maybe find what's going on with me that makes my body shut down.

You have reason to be depressed and we all go through it so don't worry about how you sound, believe me I have sounded worse at times.

I hope that hospital bed is more comfortable then the ones in the hospital. That's another thing I can't stand in the hospitals. With the TOS I can't lay in one any length of time.

I'm glad you are out where you can talk to people and not be alone so much too, maybe that will help you with some of the depression.

Hang in there,
Ada
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