hi joan
having such a bad time this week. can't take it anymore. how have you handled the rsd so long? i guess iam just going through a bad week. mentally and pyhsicaly. hows your daughter? iam so excited for all of you. hope your well.

love sue k.

p.s. mabey tommorow will be better. iam going to a martina mcbride concert in springfield. going to load up on meds and bring the crutches. i hope it takes my mind off things.

Did "Our Sue" just say;"Martina McBride"?? OMG I just love her!!! Go, have fun, drink, be merry!! Sounds like such fun, Sue. I hope you feel better, I know her show will help ya! Love and hugs, Desi How have ya been doing as of late, Joan?? better.. I sure hope! Love, Desi

hi sue,
sounds like you are having a bad day. sorry. take it at that, and get up tomorrow and try again. i have lasted with this rsd the same way i have gotten through the rest of my hip troubles and pain all my life, i ignore what i can, medicate what i can, and then i live life as best i can. i have some horrible days, and i cry at time, but mostly i assess my 'spoons' for the day and get on with it.
i do not wait for someone to understand me ... i tried that ... no one 'gets it'. and i have larned not to do what others demand of me, but what i feel i can and want to do. it is survival, Sue.
i do not believe i deserve this, or that it is a punishment, although at times it can feel that way. i believe it pushes me to do and feel and be what i am meant to do and feel and be. it is not my choice, but how i deal with it is.
now as for concerts ... i went to see peter paul and mary a few months ago and they are my favorites since as far back as my teens and that is far back ... and i feel i enjoyed it more than most because getting there, and having that joy, is something extra special to you and me. it means more because it is a big deal to get there and sit through it. i floated for day saying to myself .. i actually saw them and sang with them! so, i do hope you thoroughly enjoy your concert and feel how special it is, and come home a bit refreshed.
you know sue, your life and mine have crossed for a reason. we have a sister heart i think. i know how you felt as a child, a teen, and now with rsd as an adult. i will be here for you, and i look forward to many chats together. you can complain to me or share a good day ... i'm happy to be here for you and visa versa!
my daughter is moved into her house.. i way way way over did helping, and i am sooo in pain and tired, but she is in and she did not life a box. i orchestrated and helped organize, and her boys and my husband worked and worked. so now we will fix up the place with the curtain etc. and get ready for the twins! i will keep you posted over the months to come for sure. today i was a at graduation party for my nephew and she came in and was the center of attention ha! everyone loves that you are having twins! it was great. she is glowing.
so chin up my sister. and tell me about the concert.
joan

joan.
the concert was great! dimond rio was there too. but when your at something like that you forget about the pain for a while and things you shouldn't do. the next day i payed for it but it was well worth it. i love country music. my biggest dream is to see rascal flatts. i love them. hope your well.
love sue

I'm so glad you enjoyed the concert. oh, everything has a 'pain' cost, and if it was worth it, that is all that counts. I do that all the time.
the heat and humidity are killing me and making me swell! and my AC broke! the thunder is coming though and it will cool us down, and someone is coming to fix the AC friday or saturday. oh well, i have a small AC in my computer room, so I am cool right now.
rest now from your venture and then think of what you will do with your next burst of energy. ha! take care, joan

hi joan,
i got my new brace on friday. its hard to get used to ,but it is helping support my foot until they can do the fusion. its stopping some of the pain in my foot. how is your daughter? how are you? its so nice out today, not to hot i think I'll sit outside and relax. I finally said no to babysitting today, a first for me.
hope your well.
love
sue

HI SUE,
tell me why are the bones in your foot so bad? is this an ongoing thing like wear and tear from the hip problem, or from some type of accident? i have to wear a brace for the foot drop and i hate it ... i have throw it across the room a few times! ha! not too mature, eh? but it does help and get me where i need to go with less tripping. so good luck with the adjusting to it.
i also wanted to ask how long you were in body casts? i was in them for about 2 and 1/2 years. from 3-5 years old. my father made a scooter for me to lay on and get around the house. i learned to be a good artist though. there is something good that can come out of everything i guess.
i had to deal with a problem with the grandson who lives with me this week, and so that has not been fun. but today is gorgeous, and neither hot nor humid, so i am enjoying it. i just cut the border strips for a quilt i am finishing and will go back and get it done after this. it is for my kitchen table. then i will begin crochet and sewing for the twins! susan is doing well except with the diabetes. her numbers are a bit high so she is seeing the doctor every Monday. i worry of course, i have to, i'm the mother! but she looks good and is getting bigger. we do not yet know the sexes. maybe in july.
well, i hope you have a low pain weekend and holiday.
how nice to have a 'congenital hip/rsd sister!! joan

hi ,
the bones are bad from the foot drop. i think over time it just gave out. i have the brace so i don't trip also. but this new one is for better support also. i have fallen alot from my foot just turning over. now if i have to get up in the middle of the night and get to the bathroom, i have to use crutches. it takes to long to put my shoe and brace on just for that.
iam not so sure how long i was in a body cast. i know it was for at least a year. my dad made a special seat for me to sit in and in the home movies it looks like i learned real quick to get around on my stomach. my mom says i was always breaking the cast. the doc gave her supplies to fix it herself. it is nice to know someone that has the same exact thing as you. you really know what its like to have something wrong for all your life. although iam so sorry you have these problems. iam sorry for all of us.

love
sue

HI SUE,
well i did not realize that you could have such a breakdown from the foot drop. did you wear a brace right from the time of the hip surgery? i can move my foot in certain ways, i can press down, like stand on my toes, and move inward and slightly outward but i cannot lift the foot up or move sertain toes. i can twist my ankle easily because of the weakness there and so do wear that brace just about all the time. i have worn a day brace since the beginning, and i wore a night brace for years because if my foot is in 'drop' position i get horrid leg cramps. i go without the night brace now unless i have over done during the day. i have a four pronged cane near the bed for those night time bathroom trips. the crutches are easier but i use the cane. who knows why? i remember using the metal crutches as a child and doing tricks on them when no one was watching. i was pretty good swinging around back then!
i asked about how long you were in the body cast because i figured if one is diagnosed earlier then they would probably be in it a shorter period of time. did you have to go into the hospital and have the cast repostioned every few months? i remember the anesthesia well and how sick it made me! you will have to excuse my curiousity but i never thought i would talk to someone who has been through what i have. i bet we could talk for hours on end. from the crawling on the floor, to the kids at school, to the fear or child birth, to the rsd .... it spans a lifetime. it is incredible to me that we have met. please if i bug you with my questions, tell me.
lovingly, joan

Bumped Up For Sue K