Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-19-2014, 04:54 PM #1
TerriLHF TerriLHF is offline
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Post Any info on rashes and RDS/CRPS?

Hi all,

Wanted to find out if anyone else has experienced sudden rashes on their RDS/CRPS affected body area?

My right foot/ankle is affected with CRPS and a rash pooped up about 2 weeks ago on my foot and ankle. My Dr put me on a steroid pack for 5 days, but it didn't do anything to the rash. I have read that rashes are part of CRPS...just wanted to hear back from anyone else their experiences and remedies.

Thanks!!!!

Best to all

Terri
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Old 08-19-2014, 07:29 PM #2
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Quote:
Originally Posted by TerriLHF View Post
Hi all,

Wanted to find out if anyone else has experienced sudden rashes on their RDS/CRPS affected body area?

My right foot/ankle is affected with CRPS and a rash pooped up about 2 weeks ago on my foot and ankle. My Dr put me on a steroid pack for 5 days, but it didn't do anything to the rash. I have read that rashes are part of CRPS...just wanted to hear back from anyone else their experiences and remedies.

Thanks!!!!

Best to all

Terri
Hello Teri ,unfortunately yes ,I'm one of those unlucky ones suffering with rashes and hives many days and suddenly. Mine are kind like pimple look but hurts when something rose then,hurts for real.
Mine are not on my rsd area ,well the one officially diagnose ,but according with some dr my rsd was spreading and feels like they are triggering my pain more.they are around my belly or back,trigger by sweet or heat,any warm weather changes send me stray to flare ,dr only recommended Benadryl and try not to stress,you right ! Like is easy to have pain plus those time bumps hurting as hell.
After few days they go away and few days later, I start all over again
Don't know what s really the problem , I have an spinal cord stimulator as well and trust me ,that's another source of heat and makes my life so confuse and never resolving that puzzle.
Hope soon to see a new dr and finally get a better treatment to treat the rash or at least ,a logic answer ,not excuses like this one : oh hi ,them system case,that as my dr way to approached me every time I saw him. the mystery case,so unprofessional and not helping in any way.
Gentle and soft hugs,take care ,Jesika .
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Old 08-29-2014, 09:38 PM #3
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I get rashes and tiny red dots. The ones that turn brown sometimes hurt. They come and go and come and go again. No fun, but it is what it is,
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Old 08-30-2014, 03:29 PM #4
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I get rashes and tiny red dots. The ones that turn brown sometimes hurt. They come and go and come and go again. No fun, but it is what it is,
My neurologist says that my rashes that come and go are actually small pockets of blood surfacing due to thin tiny blood clots caused by veins being strangled by some nerve swelling.
She tells me that this is common in CRPS cases usually brought on by a trigger of stress.
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Old 08-30-2014, 06:18 PM #5
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When to my family dr and he said same thing,neurological and will go ,but when ,my hurts and looks like blisters or bad acne and are trigger by sweat and stress.
Gabapentin helps,but i still have then every month and really painful ,and all the areas around hurts as result ,so I'm still with the puzzle as you are,with Benadryl cream,tablets,goldbond spray to cold down my sweaty areas and other than that ,nothing else is working ,
Hope someone finally get a logic answer beside the one Russell mentioned.
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Old 08-31-2014, 11:20 PM #6
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I get rashes sometimes on my scalp and ears. Oddly enough, I have not gotten rashes on my rsd sites. But my dr said that rsd can cause rashes and sores on other areas that are not where the original rsd site is. My PM dr told me that they really can't do much for them. Sometimes my rashes last for months. I just try to be patient until they go away. They get sore sometimes and bleed so I try keep the affected area dry and clean and hope they go away soon. I hope yours goes away soon too. Take care my friend.
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Old 09-01-2014, 12:19 AM #7
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Yes- photos of some by members
http://neurotalk.psychcentral.com/thread16167.html
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Old 09-19-2014, 02:45 PM #8
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I have had 2 different kind of rashes so far, my PCM didn't know that they where connected to my CRPS until I told him and gave him info from different links.

Thank you for the help, I don't feel frustrated talking with my Doc now that I can come here, ask a question about CRPS first and get some info that I can bring back to him.

Feel like we are all making him a better Dr

Thank you for this website and everyone's input!

Terri
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Old 09-21-2014, 10:28 PM #9
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Quote:
Originally Posted by TerriLHF View Post
I have had 2 different kind of rashes so far, my PCM didn't know that they where connected to my CRPS until I told him and gave him info from different links.

Thank you for the help, I don't feel frustrated talking with my Doc now that I can come here, ask a question about CRPS first and get some info that I can bring back to him.

Feel like we are all making him a better Dr

Thank you for this website and everyone's input!

Terri
Yeah, I get them too over my affected arm. They come and go, like everything else. They are hot and irritable when they happen but don't stay too long.
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