Hey Russ! I have had some eye issues, including blurriness, and the drs have concluded that it is RSD related. It is good that you contacted the dr and are ruling out anything else. Medications can always be a factor too, but not for me since I wasn't taking anything.

Good luck to you!!
Nanc

Russell - so sorry about the scan results. What can cause the cerebellum to shrink???
Sounds scary, how are you coping? We are all here for you. Gentle hugs ~ Lottie

I'm so sorry Russell - what if anything can be done? Is this caused by CRPS or something different entirely? Just curious.

Wishing you better days,
Tessa

Honesty I wasn't expect those result but sure your neurologist might find a way to treat the damages cause sure by the rsd ,I hope soon you have some options and as always ,hope you and wish you the best ,gentle hugs and lots of love,Jesika .take care

Hi Russell,
I am so sorry to hear your news. Please let us know how we can help. Sending hugs and prayers your way!

Hi Jesika, (Love the spelling!)
I hate to be the bearer of bad news, especially about myself, but there's really nothing that can be done. Except for experimental surgery so that's out!
Noboby's cutting into my head while I am able to stop it!
I just hope it stops by itself before any further damage.
I've already lost some of my motor skills. Hard to talk, walk, and stand. Now I cant sleep on my back for fear of choking on my own tongue.
Sorry for the bad update...
Love all you guys...

Man I'm sorry Russman. We're all here pulling for you. Much love.

I'm really sorry to hear this news.

There's literature out there to suggest that gray matter shrinks in RSD. Is this a problem we all have but just may not be aware of? I mean, I have blurry vision, brain fog and all the other symptoms they claim go along with this shrinking gray matter. Just wondering.

Russell,
I'm sure in disappointing diagnosis but they are now some new medical trials and hope you fit on one of than,one thing ,you have to keep the strong positive attitude as you do.
I'm sure you are scare and feeling confuse for all things going on but you can do it !!! Have hope and faith ! We love you and sure wouldn't think twice to trade places with you and keep going even as hard as this can be ,keeping good attitude helps and I'm sure a solutions will appear soon.
I heard from rsds is going to launch several trials for rsd suffers starting November ,I'm desperate and anxious waiting for those FDA new medications and trials .
We are all here ,full,of faith each believing in our on way of belief but sure no matter what religions we belief or maybe many don't believe on any,I'm sure we all thinking and wishing the best for you,we are your brothers and sisters in pain and we might not share same options of belief ,but sure we share same Lives and only want the best .
I'm open to any corrections on my spellings ,I'm still learning and not get offended ,plus my iPad make it worse !!!!
But is fine ,I do need help in many areas and grammar not my mayor .
Loving soft gentle hugs from Jesika .
I'm truly touch by your strength and hope only the best .

Attached Thumbnails