Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 09-08-2014, 02:02 AM #1
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default Ketamine ,how the procedure is or how it works?

I heard a lots about ketamine but when I asked how it work or what the procedure I never had a clear answer
Can anyone explain me who the procedure is ,is via IV ,like epidural ,things like that,injected through a pump on what area?
Please ,can someone help, I already had scs I not sure if you can receive ketamine but still wants to learn about it and maybe is an options beneficial in my case and many others.
Gentle caring loving hugs and hope any input with clear that questions and thank you so much for all the help and support .with love ,Jesika
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote

advertisement
Old 09-08-2014, 02:40 AM #2
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default

Quote:
Originally Posted by eevo61 View Post
I heard a lots about ketamine but when I asked how it work or what the procedure I never had a clear answer
Can anyone explain me who the procedure is ,is via IV ,like epidural ,things like that,injected through a pump on what area?
Ketamine is a drug with multiple applications ..... mainly for starting and maintaining general anesthesia. Other uses include sedation in intensive care, .... as a pain killer and as a treatment for complex regional pain syndrome.http://en.wikipedia.org/wiki/Ketamine

In simple words, Ketamine is a very strong pain killer, given only under very strict medical conditions.

I have been given Ketamine, but not for the same reason as others here. When I had it, it was IVI through a drip, in a hospital setting... (ICU) for me.

Hopefully some-one with more information about use for RSD/CRPS, will be along soon with more relevent information for you.
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.

Koala77 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (09-08-2014)
Old 09-08-2014, 06:58 AM #3
LovesTerriers's Avatar
LovesTerriers LovesTerriers is offline
Junior Member
 
Join Date: May 2014
Location: Omaha, NE
Posts: 29
10 yr Member
LovesTerriers LovesTerriers is offline
Junior Member
LovesTerriers's Avatar
 
Join Date: May 2014
Location: Omaha, NE
Posts: 29
10 yr Member
Default

Quote:
Originally Posted by eevo61 View Post
I heard a lots about ketamine but when I asked how it work or what the procedure I never had a clear answer
Can anyone explain me who the procedure is ,is via IV ,like epidural ,things like that,injected through a pump on what area?
Please ,can someone help, I already had scs I not sure if you can receive ketamine but still wants to learn about it and maybe is an options beneficial in my case and many others.
Gentle caring loving hugs and hope any input with clear that questions and thank you so much for all the help and support .with love ,Jesika
I receive outpatient ketamine infusions (had 4 so far) and I am waiting to go into a 5 day inpatient program(doesn't start until end of the year or beginning or next year). They are administered through an IV in your arm (My doc uses a numbing med prior to the IV insertion and uses and pediatric gauge IV). Your PM should also give you a benzodiazepine, such as Midazolam, to counteract any anxiety and/or hallucinations (depending on the dosage). The procedure can take anywhere from 2-4 hours (depending on the PM doc). It has been a life saver for me. Each time I receive more pain free days following, or as I like to call them..."mini-remissions", and not only that, my swelling is going down, my skin color is looking better and I am now in an aquatic therapy program to help rebuild my muscles (which had deteriorated badly).

Here is a link that gives "An Insiders View of Ketamine":

http://www.rsdcrpsdoesntownme.com/ar...amine-infusion

I hope this helps with your questions. I wish you luck on your journey. My thoughts and prayers are with you!
LovesTerriers is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (09-08-2014), eevo61 (09-08-2014)
Old 09-08-2014, 03:22 PM #4
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default

Thanks so much for your Inputs and links,no one before had gave an specific answer ,I am glad and thankful you did and know as well many others will get benefits from your Inputs.
I also noticed ,several sessions are ended but sound fine at least is not injected on your spine like the lumbar block in my case for lower limbs but promising and sure I have now some tools to have that talk with my new pmp this week ,hope he consider a new therapy for my rsd that is spreading in certain areas for a while,the scs works the areas that was suppose to take care but is hard to handle scs in some days .gentle hugs to all and again thanks so much for your help,also let us know how it goes lately ,ok? Best wishes and lots of love ,Jesika .
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
Old 09-14-2014, 12:39 PM #5
CatPutsche CatPutsche is offline
Newly Joined
 
Join Date: Sep 2014
Posts: 3
8 yr Member
CatPutsche CatPutsche is offline
Newly Joined
 
Join Date: Sep 2014
Posts: 3
8 yr Member
Default

Quote:
Originally Posted by eevo61 View Post
Thanks so much for your Inputs and links,no one before had gave an specific answer ,I am glad and thankful you did and know as well many others will get benefits from your Inputs.
I also noticed ,several sessions are ended but sound fine at least is not injected on your spine like the lumbar block in my case for lower limbs but promising and sure I have now some tools to have that talk with my new pmp this week ,hope he consider a new therapy for my rsd that is spreading in certain areas for a while,the scs works the areas that was suppose to take care but is hard to handle scs in some days .gentle hugs to all and again thanks so much for your help,also let us know how it goes lately ,ok? Best wishes and lots of love ,Jesika .
My 12-year-old does the ketamine outpatient infusions 4 days a week (for 4 hours) and has done the hospital inpatient infusions 5 times now. They have been successful each time for her. The infusions are pretty easy. We go in at 8am, she's hooked up to an IV pump, the nurse inserts the needle into her MediPort (we had THAT installed for her after deciding that although the PICC lines were so easy to use, the care and maintenance were a lot of work and her skin was too sensitive), and she is given a 1mg tablet of Ativan, a 2mg tablet of Clonidine, an IV bolus of Toradol, and an IV bolus of Zofran (both before and after the infusion). The infusion nurse then injects the appropriate amount of ketamine (it differs for each patient - Maddie takes 1200ml/4h) into the sodium chloride solution, which then drips over a period of 3.5 hours. After the infusion is done, the needle is taped down and covered for the next day's infusion (as it is for the other patients - they do not remove the IV daily).

She was diagnosed with RSD/CRPS on 3/23/14 and it's been a nightmare for us. We finally got her medications set. She also takes ketamine orally twice a day in the form of a lozenge that was specially compounded for her at one of the pharmacies here. Perhaps that's something that the doctor could think of for you as well? Oh - we are in San Antonio, TX. Our doctor is Donald Bacon. He's a pain management specialist/anesthesiologist and works with RSD/CRPS patients all the time. He has a ketamine infusion room in his office - the only one in the city.

I hope this helps you and others around us!!!

Catherine
CatPutsche is offline   Reply With QuoteReply With Quote
Old 09-20-2014, 10:18 AM #6
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
Default

I started receiving low dose, outpatient ketamine infusions in April 2010. I returned to my FT job in June of 2010 after a one year LOA. To date I've had 122 treatments. I typically go for 2 days in a row every 4-5 weeks. My dose is now 325 mg. per day.

My ketamine is administered via IV through my chest port. It is mixed in a small bag of saline solution first, and my nurse administers Versed, Zofran, and Toradal as needed well. I take Ativan after the infusion.

My doctor is Pradeep Chopra, he and his staff are wonderful. I had a chest port implanted a year or so ago and it has made the process of getting an IV much easier. Dr. Chopra has also adjusted my meds to include LDN and many supplements.

The link above to Kaitlyn Pintor's story is awesome. I also recommend the links on the RSDSA's website. You can find some great educational videos from their latest conferences - Dr. Chopra, Dr. Getson and several others.

Please let me know if you have any specific questions on the process.

All the best to you, Sandy
SandyRI is offline   Reply With QuoteReply With Quote
Old 11-29-2014, 12:34 PM #7
Gunny Fitz's Avatar
Gunny Fitz Gunny Fitz is offline
Member
 
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Gunny Fitz Gunny Fitz is offline
Member
Gunny Fitz's Avatar
 
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Thumbs up Ditto !!

Quote:
Originally Posted by eevo61 View Post
I heard a lots about ketamine but when I asked how it work or what the procedure I never had a clear answer
Can anyone explain me who the procedure is ,is via IV ,like epidural ,things like that,injected through a pump on what area?
Please ,can someone help, I already had scs I not sure if you can receive ketamine but still wants to learn about it and maybe is an options beneficial in my case and many others.
Gentle caring loving hugs and hope any input with clear that questions and thank you so much for all the help and support .with love ,Jesika

new member here seeking the same info - hope i can piggy back on your quest here? Posted several requests seeking advice and all. Im a Disabled Vet with severe PTSD, TBI, Cervical spine damage, etc.

Semper Fi!
Gunny
Gunny Fitz is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
ketamine infusion procedure codes numb Reflex Sympathetic Dystrophy (RSD and CRPS) 2 10-07-2011 06:45 PM
RSD ketamine coma procedure for full body RSD kittycapucine1974 Reflex Sympathetic Dystrophy (RSD and CRPS) 3 08-08-2011 06:53 AM
RSD Ketamine COMA Procedure questions kittycapucine1974 Reflex Sympathetic Dystrophy (RSD and CRPS) 2 06-27-2011 06:46 PM
first RFA procedure teege Spinal Disorders & Back Pain 6 03-22-2008 07:16 AM


All times are GMT -5. The time now is 07:43 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.