I am in so much pain! The only reason I'm even able to write about this is my voice text on my phone. ...God! ! Please say some prayers for me please! ! I seriously can't handle the pain much longer! !!!!! I'm having the norm burning, shocking aching bs we all deal with on a daily basis, but it heightened to the max and then, which I haven't had this pain in a long time, a severely intense stabbing pain, in my fingertips, wrist, the back of my elbow and other fun random places!!! I seriously need to scream it hurts so much. . I'm really really scared that its migrating to my legs. I was already in a wheelchair for 2 months this summer. The podiatrist thought it could possibly be the CRPS but didn't know for sure. When I got a lot better I thought I dodged a serious bullet. Tonight as I was laying in bed when I noticed both feet felt severely tingling, numb, with a nauseating deep bone BBC ache, and the scariest was the burning on the bottoms, tops, tips/toes, and a sharp shooting burning/electric shock that shot up the left leg from the ankle to mid thigh. This really freaks me out! ! I thought I was getting better. ..A few months ago my doctor downgraded my left arm condition, to Peripheral Neuropathy. This was due to the discolorations, temperature fluctuations, the "flare ups", and general daily pain levels being a lot less troublesome. I haven't had any major pain flare ups since February. I didn't fully agree with his change in my diagnosis., but was grateful for reprieve!
I swear I did absolutely nothing to aggravate my arm.. well I can definitely say that it is NOT peripheral neuropathy! ! I can't even move my wrist or elbow. .. If I do I feel like screaming or passing out from the pain. I have had quite a bit more pain the last few weeks, but I know that will happen from time to time. I swear this time is about the worst it's ever been. .. I find myself holding my breath so I'm not jostling my arm.... and just for fun the red and white mottled discoloration is back. .still very lightly but I think I can safely say that I still have this life stealing monster that we all know as CRPS!!
And of course it chooses Friday night to flare up, because I can't see my doctor until Monday. .... I'm really trying to hold out until tomorrow when the Urgent Care through my doctors office is open, but I'm not sure if I can. .... seriously right now even on oxycodone, methadone, doxepin, and my compound cream can barely touch this pain! ! I was laying in bed, trying to meditate and stay calm, while I was waiting for my night time dose of pain meds. I was hurting way worse tonight, nothing helped. I was laying in bed for 2 hours trying not to cry out and sob too loud, so my fiance could sleep. ... I couldn't contain my tears or cries of pain so I just decided to get up. I don't want to go to the Emergency Room. I get condensing looks because I'm a "chronic pain patient", and it isn't a "life threatening" situation. I hate waiting for hours knowing exactly what they can do to help. 1-4 shots of diluted or something like morphine. It usually only takes 2. Plus I'm actually kinda terrified of IV'S now since it was an ER severely botched IV attempts that caused this in the first place. ...
I was so hoping the doctor was right and my CRPS had gone into remission. ....not likely.....

Please I know this was long, and I know you all go through this all the time llike myself, and any of you who were cursed with this debilitating condition, but I really really need your support and understanding right now! ! Please just talk with my or if that's not possible send all the love and prayers you can my way!!

Hi,
I don't have what you have. But I have been up 30 hours because the pain in my head and neck from several brain injuries is quite severe for some reason the past few days.
I have a very strong feeling your pain dwarfs mine after reading your entire post. I will send prayers your way as requested and will be hanging around until I fall asleep.
You are not alone.

Thank you for your prayers. I've gotten used to this kind of pain, and have had a much better handle on it this year, but tonight was just off the charts bad! I'm sure what you suffer through isn't a day in the park either! I will send prayers right back at you too! I hope you (we both! ) are able to get some much needed sleep soon!

Amen to that!! I sincerely hope you (we) get some relief soon.

I'm still experiencing insane amounts of pain. But I realized something tonight. Even if I can't always see it or fully believe it at times, and I think this applies to all of us.

We can make it through anything. They say what doesn't kill you makes you stronger? ... Well then we all must be Titanium Warrior Goddesses and Gods!!
I can't even think about moving my arm, and my legs don't feel much better. ..lol great! I'm not sure if it's for crying or something else but I have a wicked headache too!

I realized I still have soo much to be soo thankful for! And I would live this same life a Million times over. Crps and everything. Because of what we've all been through, is what opens up our hearts to complete strangers. To help them, show them they're not alone, to love them when they feel the most depressed. I know i have a wonderful family and a true gift from God in my daughter. God shines his love and grace down when we need it most, even if he doesn't answer every prayer the way we want.

I truly love you all! I hope you have the best day you possibly can!

Sending good thoughts and prayers your way. Take care of yourself...bad flares are a scary thing...especially if you have been doing relatively well lately. I hope you find some relief soon. Hugs.

I can't imagine what your going through. I hope everything settles down so you can get some rest. Keep posting and let us know how things go.

Hey Songbird,
I am Blackfoot and going to a spirit dance tonight. I will smoke and sing in your name. I hope it does you good...

I'm so, so sorry to hear what you're going through, Songbird!!!

I'd say to hell with feelings - go to the ER with someone that loves you and get some relief! I totally know what you mean, though - I suffer from the invisible disease of CFS and am the constant butt of rolled eyes and condescending comments.

I just went through 5 months of chemo for ovarian cancer and had to go to the ER 4 times. I kept putting it off because it IS embarrassing, but finally by the last 2 times, I just said to hell with it, it's stupid to put it off and get worse, and I just went, and got the treatment my body needed.

Your last post was 12 hours ago, so you're probably in a different time zone, but you have my prayers as soon as I hit the post button.

lots of gentle hugs and support

I just responded on the other thread - didn't see this thread - I'm so glad for an encouraging realization for you. That helps!

gentle hugs and continued prayers