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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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My husband and I just returned from st. judes. Our 4 month old had been diagnosed with a stage 4 neuroblastoma 2 weeks ago. This was our last option for any kind of treatment. They say that any treatment would just cause suffering, and we should just prepare for the "outcome". So now we are home, it is taking all I have just to type this post. Needless to say, the phone calls to family we have to make will be even harder. All we can ask is for a peaceful and painfree end to Josie's little life. If this sounds awful to anyone here then I'm sorry, but we did not come to this decision easily. I started this post over 4 hours ago, but had to stop several times, as bad as my pain....I would give anything to spare my daughter. So needless to say, I've cried for hours trying to finish this post. My other 2 will be home from grandma house tomorrow, and that is not something i'm not ready to explain. Pray, pray for peace and comfort, pray for support.
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Life is not measured by the number of breaths we take, but by the moments that take our breath away . |
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#2 | |||
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Junior Member
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I cannot even begin to imagine what your family is going through, it is a parents worse nightmare. I wish I could come up with something profound to say or make sense of something that makes no sense at all....all I can offer are my prayers. Much peace to you and your family, enjoy every moment with your precious angel
much love Jeanne |
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#3 | ||
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Member
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May you feel the loving presence of those who hold you
in their thoughts and prayers May you see the light in the darkness during these challenging times May your spirit find what it needs to substain you on this journey May you be filled with comfort, strength and love. |
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#4 | ||
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Member
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I am so sorry for what your child and your family are going through. Please know that I you are in my thoughts and prayers.
Sue k |
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#5 | |||
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Senior Member
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Got ya covered in prayers.
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. Gone Squatchin |
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#6 | |||
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Junior Member
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I lurk, and never post, but this time i had to. To lose a child is the worse thing a parent can go thru, and a baby this young, I can't even imagine. Prayers are the least we can do for you. And no one can think less of you for the decision you have made to let your baby go in peace at home, instead of a sterile hospital room. In your previous post you have let everyone know how much you love your girls and family. My heart goes out to you and yours.
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#7 | ||
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Member
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((((((Dolphn)))))),
![]() I'm so sorry ![]() Bless you all. I hold all of you in my heart and in my prayers. I pray that you find the strength through your family and your friends -- to let your baby go. My heart aches for you and your husband and your children. I pray for all of you. Hugs. Barb ![]() |
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#8 | ||
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Member
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I am so sorry this has happened. Nothing could be harder than this. A lady on the TOS site just lost her daughter a few months ago.
I pray that you will feel a heavenly peace over you as during this tragedy. That somehow you will have the strength and faith to go on and make a difference in this world. And after time you will feel a comforting presence that is your little angel right there with you. My tears are falling also and my heart hurts for you and your family as you all face the biggest challenge any person in this world will ever face. ![]() |
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#9 | ||
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Member
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Lord,
Please wrap your arms around this mother and her family. Please let Josie be in peace in her final moments. Please accept her into your arms and give her parents and sisters a calming peace knowing that you have taken her into your arms and she is no longer dealing with a horrible condition and is once again smiling. Please allow her parents and sisters a feeling of extra comfort as the healing begins. Amen. Anytime a child is taken from our lives too soon everyone suffers. Dolphin, I cannot begin to imagine the agony you are going through and I want to say that I believe you and your family are brave for coming to this decision. hugs.
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. . CHRISTINE . . I AM NOT A DRUG SEEKER, I AM A PAIN RELIEF SEEKER. |
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#10 | ||
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Grand Magnate
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Oh Dolphin I am so sorry, this breaks my heart. May God Bless you, your child and your family in this difficult time. You are in my prayers.
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