Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-05-2007, 02:43 AM #10
dolphin dolphin is offline
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Join Date: Sep 2006
Location: the end of the rainbow...living in the pot of gold
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15 yr Member
dolphin dolphin is offline
Junior Member
 
Join Date: Sep 2006
Location: the end of the rainbow...living in the pot of gold
Posts: 85
15 yr Member
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I'm never up at this hour, but we are no longer sleeping. Danny and I have spent hours on the phone with family, and in between we have been reading your post of support. My husband can not believe the support and prayers from "strangers on the web", I told him, none of us are strangers, we are all bonded. We have not got support from our entire family, some believe we should try "anything", regardless of the pain it will cause Josie, even though we have explained that nothing will save her at this point. But now Danny and I are awake, wondering, how could we not have known. What kind of parents are we?? Our baby has had this since birth, and we never saw a problem...I mean if she had not stopped eating, we would have never known. We have held her for hours, a perfect little girl, nothing looks wrong, she is a little gift from god. But how, and why could this happen. Yes, I know i'm ranting...I can not rant anymore with Danny, he is as lost as I am. I just need to say these things to someone...and I know that you are all always here. My family will start arriving on wed. 5 sisters are on the way, 3 brothers and their spouses, 3 sisters can not come due to family (big catholic family). Danny's family is all here (we live on the same property as his 3 brothers, sister, mother, 2 nephews). So we will have family everywhere. As most of you know, I work for hospice, so my co-workers will be here to hold our hands, and do the job they have been blessed to do. Thank you for letting me ramble on...and thank you for the prayers.
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