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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Need some ideas

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Old 02-12-2015, 09:39 AM #1
Always_Believe Always_Believe is offline
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Default Need some ideas
So this RSD/CRPS is a new diagnosis for me and I'm trying to learn everything I can. I am making some 'modifications' to allow for more mobility/independence. One of my problems is I think I am pushing too hard. It may be that I haven't been as mobile for the past week or so & in being more mobile the past 2 days, my muscles are freaking out. I need some suggestions...

Spasms. Ugh. The spasms. I have this little muscle in the arch of my foot that is constantly spasming/twitching. Is there a trick to get it to stop?

I also need some suggestions on cleaning floors. Vacuuming, sweeping, mopping. I tried but I cannot seem to do any of these tasks. Is there a particular vacuum that is super easy/light that is good on tile floors too? I have a shark steam mop, but it broke in the move & I'm not sure that would be the best option. Does anyone have a roomba &/or a scooba?
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Old 02-12-2015, 10:27 AM #2
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Pace yourself you push too hard and you'll make it permanently worse. Don't know if you can get them over there but we got Vax Mach Air which I can use one handed still need to take a break halfway through the room. Also got steam mop but again need a break
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Old 02-12-2015, 10:48 AM #3
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Thank you! It looks like the only place I can find it is on eBay.

Looking more into a robot vac since the standing/walking is my biggest problem.

I go to the ortho tomorrow to evaluate if there is a 'new' knee injury. Next up is neuro to evaluate nerve entrapment/palsy. Hopefully my PCP will refer me to PM soon.
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Old 02-12-2015, 02:05 PM #4
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I have a Roomba and it works really wells. I can't use use a vacuum in large part due to the vibration. I also use a large floor size lint roller on the carpet for quick pickups as well.
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Old 02-12-2015, 03:56 PM #5
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Quote:
Originally Posted by LIT LOVE View Post
I have a Roomba and it works really wells. I can't use use a vacuum in large part due to the vibration. I also use a large floor size lint roller on the carpet for quick pickups as well.
Great info! I'm thinking I can have my son vacuum with a real vacuum weekly/as needed and run the roomba (although I heard the Neato XV picks up more) a few times/week to clean up after the pets. iRobot also has a scooba that I'm looking into for the kitchen.

So with the flooring issue looking like it has a solution...any tricks for spasms???
Last edited by Always_Believe; 02-13-2015 at 07:44 AM. Reason: spelling
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Old 02-12-2015, 09:42 PM #6
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Quote:
Originally Posted by Always_Believe View Post
Great info! I'm thinking I can have my son vacuum with a real vacuum weekly/as needed and run the roomba (although I heard the Neato XV picks up more) a few times/week to clean up after the pets. iRobot also has a scooba that I'm looking into for the kitchen.

So with the flooring issue looking like it ha a solution...any tricks for spasms???
The roomba picks up my dog's hair.

Your doc might be able to find a prescription that helps reduces spasms. My come and go, and are unpredictable.
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