Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-27-2015, 10:00 AM #1
aezaidan aezaidan is offline
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Join Date: Mar 2015
Location: Cincinnati, OH
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10 yr Member
aezaidan aezaidan is offline
New Member
 
Join Date: Mar 2015
Location: Cincinnati, OH
Posts: 3
10 yr Member
Default To post or not to post (to facebook)

Just yesterday I was diagnosed with RSD/CRPS. It has been 3 months since I have been able to walk and I have been going through test after test after test. People on fb have been asking about my progress and if any diagnosis has been made, but I'm struggling with whether or not to tell people about it... it is such a scary sounding diagnosis (and, to be honest, I am terrified but I'm trying to stay positive about the outcome possibilities.) I guess I just don't want to sound too dire or have people think I'm trolling for sympathy, but I do want people to know what's going on and why I'm still not walking. It's getting annoying to tell people one and a time and I still haven't really found a way of wording it that makes any sense. Also, if I'm really being honest, I don't want to tell people because it's equally annoying to hear "Omg, I'm so sorry, that's awful" or "I'm sure it will be fine." I'm just feeling a bit overwhelmed and I just can't decide what to do. Thoughts???
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