Sometimes I just feel like I can't catch a break. My biggest fear with my pregnancy last year was that I would need a c section and then have spread of my rsd internally to my abdomen...and that's exactly what happened. But I've been doing pretty well dealing with the extra pain...all I have to do is look at my beautiful smiley happy baby and it's all worth it.

Monday night at work I started to get really bad pain in my abdomen...much more severe than the RSD pain usually is and different pain...stabbing instead of burning. I almost went straight to the ER on my way home from work but talked myself out of it thinking it was probably just a flare up. Next day I start bleeding but it stops quickly so I hold off on going to the dr. Wednesday morning I have more bleeding so I go to the dr for walk in hours. Basically...they give me antibiotics and tell me if any more bleeding or worse pain to go to the ER because they will be able to do the imaging and get results right away. So yesterday I start bleeding again at work so at the end of my shift I go to the ER (its 11pm at this point).

Yeah...they find a 4.5 cm ovarian cyst that is causing this pain. Good news is that the cyst is probably nothing to worry about and will go away on its own (still have to follow up on it though). Bad news is...its incredibly painful. They gave me two doses of morphine at the hospital. I have to say...I don't take anything for my RSD pain because nothing helps so I usually don't take pain meds even at the hospital when they offer...but the nurse and dr sort of insisted I take something (this was before they even did any tests) so I gave in. Holy cow...I did not realize how bad the pain had gotten from this cyst until the pain went away. My RSD pain was still there...but just having the stabbing pain go away was such a huge relief. They gave me a script for Norco anD I'm taking it...I just can't deal with the extra pain anymore on top of the RSD.

But seriously...an ovarian cyst? WHY am I such a wreck? I have the next few days off of work and I'm just going to rest. I follow up with the OB dr Monday...hopefully things just improve on their own and this really is just nothing except a painful little blip in my life. But...ugh!!

Just needed a little vent...

Hi Catra,

Ouch! Ovarian cysts can be really painful, especially when they are large. They DO usually resolve but can take a couple of months sometimes. Even in cases when they don't happen to resolve the old days of surgery for these are long gone. Worst case scenario, they can drain it. Not pleasant but achievable via needle on ultrasound. Most likely you won't need this and it will just go away on its own.

You are not a wreck. Cysts are common and your body has a whole lotta change to sort through after baby! It IS hard dealing with one more thing and you've got work and Mom duty. That is plenty going on. It's good you can rest a few days.

Have you tried any topicals for your c-section incision? I just started a ketoprofen/ketamine/gabapentin for my ankle scar. The pharmacist felt really positive about this combo.

Glad to hear Baby is bubbly and happy!
Sending Healing Love, Littlepaw

Catra,

You've been incredibly strong and you have a healthy baby!

The first time I had a Ketamine Infusion I started bawling (and laughing) because it was the first time I had been truly pain free in over 10 years. I think we tend to forget and minimize what we deal with every day, all day.

You've been coping with fewer pain reducing options than most of us, while undergoing both a pregnancy and the recovery from a C section, you now have the care of an infant, AND you've returned back to work.

Hopefully this is a temporary setback. You need to prepare yourself that life with a child inherently means there will be more things that come up, that are beyond your control.

You might find that you will need to be open to trying new meds or finding new coping strategies at some point. Whatever makes you the most functional for your family has to be your first priority.

Above all else, you're blessed to have her and she's blessed to have you!

Sorry Catra! I think we all feel that at some point or another. mine was having the worst flare of my life be cause from q minute piece of glass in my foot, that I honestly didn't know was there !!!
I als or know exactly how painful cysts ( mine is a fibroid) and that stabbing can be however mine was BEFORE my Crps. Actually I was in the hospital for that when the 2 nurses injured my nerves causing my Crps lol!
I couldn't begin to imagine trying to deal with that kind of massive pain, your cyst is WAY bigger than mine was, on top of Crps....
Just know that you are NEVER ALONE! We will always be here to listen, support, and help each other!
Vent away! Whenever, however, why ever you need to!!!
Emma

CONGRATULATIONS!! Love that baby!! He's a blessing, and you are an AMAZINGLY strong woman!

Congratulations and vent away....yes, I find any additional pain other than crps pushes me over the edge, when that pain goes away, I'm like OMG CRPS hurts! It is always there and we get use to it, but something different takes my mind away and think, what fresh hell is this....finally that goes and the nerves are like, still here, still hurt...so kudos to you for what you are able to do and continue...

Sorry Catra and all of you with pain,
I have so many bad days and times gets worse ,I been here but wasn't posting anything anything ,I'm tired as well.
Hope you all better Days and know ,I'm here praying for those who believes in prayers ,holding hands and always wishing the best , love Jesika .

..am so sorry for all you're going thru...I'm 68 and occasionally have back pain but when I start to complain, I stop and think what my daughter and all of you wonderful people go thru on a minute to minute basis with this life changing disease!! Don't give up..I just am sure that within a few years a cure will be found...Germany and Korea seem to be more dedicated to researching a cure...makes me upset with our USA...I just keep writing those letters and hoping to see progress ~ please be strong and know you are thought of!!

Vent on love!!!!!!! Went through the cyst thing - to the point of endometriosis. Grateful I didn't have to deal with RSD until all of my kids were adults (or angels )

Blessings and thoughts of great strength to get through your days ahead!

Thanks everyone. Still having a rough time...hoping the visit with the dr goes well on Monday. This extra pain is really taking a toll on me...