Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-10-2015, 02:55 PM #2
alaska49 alaska49 is offline
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Join Date: May 2009
Location: Pennsylvania
Posts: 221
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alaska49 alaska49 is offline
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Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
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Every since I was diagnosed with RSD in 2008 when I was 20 I have been diagnosed with a new disease or find out one is spreading.
So it started with rsd in 08,
in 09 I was diagnosed with Postural Orthostatic Tachycardia syndrome so my heart rate and blood pressure goes up and down.

in 2010 I was diagnosed with thyroid cancer which was taken out and now have hypothyroidism the same year was diagnosed with Sarcoidosis each year it has spread from my lungs, to liver, stomach, small intestine, the nasal passages, and now thinking the colon, Sarcoidosis is an autoimmune disease where granulomas grow through out the body.

in 2011 was diagnosed with gastropresis so my stomach doesn't empty properly then found gastritis which is inflammation in the stomach.

In 2013 I was diagnosed with avascular necrosis which means Iam not getting blood flow to certain bones and they are dying so with eventually need surgery for each one. It started in the foot, then went to the femur then the other femur and ankle, found out 6 months ago its in both hips and 2 days ago found out its in both shoulders. I had the surgery for one ankle as it had collapsed, they put me in a ketamine coma for that surgery and that's how all will be handled.

Then 2 weeks ago found out my gallbladder is diseased and will eventually need to come out either when I cant handle the pain anymore or it gets infected

And now they are looking at possibly having connective tissues disease.

No one has said that rsd has caused me to get the rest of these diseases and at age 27 Iam at odds every time I go into a doctor I get bad news. I think rsd plays some part as before the rsd I was perfectly healthy I never saw a doctor now iam seeing specialists half the time or the month or am actually in the hospital. All my doctors are confused too they haven't seen a person have all the disease I have together in one body and its very hard to treat all at once.

Sam
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