Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-30-2015, 12:21 AM #7
pathfinderjd pathfinderjd is offline
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Join Date: Apr 2015
Posts: 5
10 yr Member
pathfinderjd pathfinderjd is offline
New Member
 
Join Date: Apr 2015
Posts: 5
10 yr Member
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Littlepaw, thank you for your reply. I do hope we are one of the ones that goes into remission.

Let me give you a little background information that I inadvertently left out...

The ortho doc was wonderful in catching this early. You see, my daughter had broken her elbow. Infact, her sister rolled off the bed and onto her arm and broke her elbow for her. This was not her first fracture. So, when it happened she knew what it was. As weeks went on, her pain increased. She was in a half cast. She had broken that elbow before. This time was different. She was in constant pain. Then, the pain started in the wrist. After the allotted time in her cast, and the cast came off, she was still in great pain and that was when he uttered the diagnosis. He ordered an MRI. It showed the fracture had not healed and some inflamation. That was it. She tried some meds, the PT, and I repeate dthe MRI to make sure the fracture was healing. It had. She had a clean MRI. The PT offered no relief. They told her what they did. Then, when I called the ortho asking for what to do now, he basically threw his hand in the air. He had only treated one other patient with it and the PT "healed" her. And since that worked for her and it did not work for us, he said he coudl do nothing eske for her. And since it was in her wrist/elbow, he referred her to a hand surgeon. It truly felt like a blow off. Then, I began to read about how surgeries can make the condition spread...and how it does nothing to help.... I did not want to subject her to a "testing" philosophy. No one we have seen since ahs mentioned a surgeon or a hand specialist. So, that is why I cancelled it. I do believe that is the only appointment I have ever cancelled during all of this. Maybe I could go? See what they say? But I am not open to a surgery. Ortho did tell me if it was a tendon issue we would have seen it on the MRI. I am not giving up. I promise to keep chasing.

Any thing else to share or ask? Maybe thos wil help me lead to the road to recovery. Fire away. ;-)

(Side note: her pain is in two very specific spots. One spot is her wrist...right beside the ulna. Other is her elbow. right in the crease all the way around.)
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