Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-01-2015, 05:16 AM #1
Taewhite Taewhite is offline
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Ive been living with this for about 5years now its my left hand after 4hand surg i now have a digit widget placed on my ring finger to help with a hook that surgery couldn't fix-i discovered i had CRSD after my 2nd hand surgery after injury..crazy i was screaming in ER given morphine for the size of a linebacker and im only 145lbs lol..surgeon was given me pain meds that was working but at the time no one knew CRSD set in..now im with a pain management and alittle better.. But does anyone feel like its just to much meds? Hate the fact i cant sleep without Ambien10mg and no able to function..does anyone have anything better working for sleep? And any new pain meds to try or nature herbs maybe?
My meds are Ambien/Ny****a/neurotin/cymbalta/condiene skin patch this cant be real...i still feel the burning/swelling/7scale pain
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Old 05-01-2015, 07:48 AM #2
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Welcome,

I am so sorry for your suffering. Not sleeping just makes the whole thing worse. It seems like quite a few of us take melatonin before bed. It is OTC. For prescriptions there is use of TCAs like nortriptyline or desipramine by some. They can make people sleepy. In studies nortriptyline and neurontin were shown to be MORE effective if used together, and maybe allows a lower dose of each. I think rebound insomnia can certainly be an issue. Ambien and any sleepers can be hard to get off of for this reason so if you can address sleep some other way that would be great.

Adjunct approaches like meditation, visualization, hypnosis, etc. Also have their place. Stress reduction is always good with this monster!

Sending Healing Love, Littlepaw
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Old 05-01-2015, 10:04 AM #3
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Hi Taewhite,
Welcome to our little family.
We are a friendly bunch always willing to help, talk, give info or just listen.
I'm not sure by what you meant by using a widget to help a hook but I had my left hand wanting to hook so bad that my fingers were digging into my wrist. The only solution was to fuse my wrist and have a plate from my arm to hand placed to at least appear normal.
That's just one of many surgeries.
My cocktails of meds are different as so many of us vary.
I just wanted to jump in to welcome you.
I hope you find relief...
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Old 05-01-2015, 10:23 AM #4
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Anyone with SCS implant ?


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Old 05-01-2015, 02:26 PM #5
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[QUOTE=shuthrbug;1139546]Anyone with SCS implant ?


There is an SCS subgroup and I know we had at least one member get one in the last few months. Maybe start a new thread?
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Old 05-01-2015, 05:50 PM #6
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Quote:
Originally Posted by shuthrbug View Post
Anyone with SCS implant ?


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Hi shuthrbug,
Here:

http://neurotalk.psychcentral.com/forum118.html

Is the SCS/Pain Pump Forum link Littlepaw mentioned. You will find a warm welcome and lots of information and lively debate there.

Dave.
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Old 05-05-2015, 07:57 AM #7
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Quote:
Originally Posted by Littlepaw View Post
Welcome,

I am so sorry for your suffering. Not sleeping just makes the whole thing worse. It seems like quite a few of us take melatonin before bed. It is OTC. For prescriptions there is use of TCAs like nortriptyline or desipramine by some. They can make people sleepy. In studies nortriptyline and neurontin were shown to be MORE effective if used together, and maybe allows a lower dose of each. I think rebound insomnia can certainly be an issue. Ambien and any sleepers can be hard to get off of for this reason so if you can address sleep some other way that would be great.

Adjunct approaches like meditation, visualization, hypnosis, etc. Also have their place. Stress reduction is always good with this monster!

Sending Healing Love, Littlepaw
Thanks so much the pain/burning really dont allow me to relax in order to sleep but im really wanting to get off the ambien but most of the nature herbs / melatonin dont work smh
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