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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Gabapentin: Prescribed dose - 400mg TID...gained 15 pounds in 2 weeks...no noticeable difference in pain, in fact, I had more flares while taking it. Previously prescribed (May-June 2014) dose - 600mg TID...gained 15 pounds in 3 weeks...no noticeable difference-doc discontinued. Discussed all of this with PCP...she agreed there has been significant weight gain and suggested I use a rowing machine. SERIOUSLY??? The med is NOT effective, my issue is with my knee & foot - how exactly am I supposed to use a rowing machine? Wellbutrin: Prescribed for smoking cessation so what difference does it make if I no longer take it? (I am doing well with my smoking cessation on or off this med) Fosamax: Combined with the GI issues from D2, and projected bone density being slim, why continue? I also need dental treatment that carries detrimental effects while on fosamax. I unfortunately didn't realize this before starting (have taken 5 doses) and doc recommendation is to NOT take the med until after dental treatment. D2: Constant heartburn/nausea. I have chewed copious amounts of tums to counteract the D2 to no avail. Have talked with doc and am taking D3 instead per doc recommendation. Therapy: Both of my therapists seem knowledgeable of RSD, however, my issue with therapy is the physical pain. I can EITHER do PT exercises OR function beyond trips to the bathroom/back to the couch. This is limiting my progress. Therapy stated their concern is that without PM, there is limited progress and without the progress, more visits will not get approved. They suggested holding off the remaining visits until I am seen by PM and have some measure of relief. Due to the 6 weeks we have been attempting to FIND PM that accepts my insurance, let alone the appointment wait time, it would seem likely that were I to postpone my remaining visits, I won't be in therapy until Christmas. Unless I pay out of pocket for PM or visit medical marijuana. LL...I so appreciate your point of view with this! My apologies for simply venting and not clarifying my decisions in earlier posts.
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Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe Last edited by Always_Believe; 05-08-2015 at 09:38 AM. Reason: spelling |
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