Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-08-2015, 06:03 PM #16
LIT LOVE LIT LOVE is offline
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LIT LOVE LIT LOVE is offline
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Join Date: Mar 2010
Posts: 2,304
15 yr Member
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Quote:
Originally Posted by Always_Believe View Post
Since I am seeing a PCP who is not handling my pain at all, ortho opted for PM referral rather than attempt anything other than a single lido-cortisone injection in my knee (with the osteo diagnosis, not sure he wants to be doing that again) and endocrinology is only taking care of vit d & osteo, PM seems my only option unless neuro takes it on. But, I can't find a neuro.
I actually need to have an EMG & the possibility of neurosurgery is still out there.
What else is out there?
I am incredibly concerned that after a 30 minute drive & a minimum 2 hour wait, anyone I talk to at that mental health clinic will throw me under a 5150!!!
PM, neuro & now psych will all have to end up being self pay & I am running out of $ with no prospect of rehab & SSDI delays delays delays. Makes me feel as though barely making it to the bathroom & back a better option than continuing within the healthcare situation I'm in now.

I will see if there are any clinics I can get into while I wait on the call back from my care manager.


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If you aren't approved at the first stage for SSDI, than you need to prepare for likely a 2 year wait before you have an ALJ hearing. Very few people are approved at the Reconsideration level--if your state even still offers it.

You aren't happy with what has been prescribed to you, what meds have you researched and want to try? What procedures are you interested in?

You could see if your ortho will consider working with you directly. If not, you might consider second opinions from other orthos--or at the very least make some calls to see if they have experience with CRPS.
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