Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-08-2015, 06:31 PM #1
Always_Believe Always_Believe is offline
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Always_Believe Always_Believe is offline
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Reconsideration was filed about 5 weeks ago. I know it will be a while, so spending money I don't have for healthcare I have Medicaid for is not a direction I am looking to go until everything else is exhausted & this conversation, all of you here, is helping me find these options!

I'm not sure what meds/procedures I am hoping for/know I want to try. I only know what I have tried-what works/what hasn't.

When I talked to my ortho, he referred me to pain management.

What has not worked:
Gabapentin; meloxicam; tramadol (allergic); lidoderm patches have been touch & go; ibuprofen; TENS
What has worked:
Nothing I've tried so far except non-use of affected extremity; hydrocodone prescribed post-op seemed to help both knee pain & slightly reduce nerve pain; Wellbutrin (previously prescribed years ago) in an IR dose (200 mg BID); not having quite the GI effects on the D3 so far

What I think might help (in addition to being back on what worked):
Muscle relaxers; Lido/compounded cream(s);

I have not been able to try pool therapy & that is in part due to the distance. I'm hoping to try that when my pain is high to see if I can get relief, although a warm bath (with or without whirlpool jets doesn't seem to change anything)
Temperature contrast has been suggested but I'm not sure a) how to manage that b) what it's supposed to do

Anything not medication, I am willing to try but I don't know what other than the above to do and if any if it will reduce pain or increase range/function...I need both.
PT suggested moisture wicking socks so my shoes don't hurt (based on moisture causing the swelling) but the ones I've seen are thicker than what I'm wearing now.

Anything medication/medical procedure wise, I'm left what my current situation is. In willing to participate in clinical trials but all are so far from me & I can't afford the travel costs.

I remain open to all suggestions (including dealing with this horrible ACA crud).


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Old 05-08-2015, 06:55 PM #2
LIT LOVE LIT LOVE is offline
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I would suggest Low Dose Naltrexone. Your ortho should have no problem prescribing it, and it has little to no side effects at the correct dosage.
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