Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-14-2015, 08:51 PM #6
Neurochic Neurochic is offline
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Join Date: Sep 2011
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Neurochic Neurochic is offline
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Join Date: Sep 2011
Posts: 246
10 yr Member
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Ali
Just to correct something you said, SCS implantation is, and always has been, available in the UK for CRPS. In fact if you check the relevant NICE Guidelines, you will see that it is actually the one and only NICE approved treatment for CRPS in the England and Wales (NICE doesn't apply in Scotland). There are many centres and hospitals in the UK which implant SCS devices on the NHS. The NHS is becoming increasingly keen on giving SCS devices to CRPS and other chronic pain patients as the devices supposedly improve and are seen to be more therapeutically and cost effective. I appreciate that you may not be a candidate for SCS but, interestingly, as the devices have altered over even just the last 8 years, the pattern of patients who are considered to potentially eligible has altered quite significantly.

Implanted pain pumps are not available to CRPS patients in the UK. In the UK, they are typically only considered for terminally ill patients. Baclofen pumps may be available for patients with severe refractive fixed dystonia (or other medical conditions) but would not be available otherwise. Ketamine infusions (such as are given relatively routinely now in mainland Europe and the USA) are not available in the UK. Lidocaine infusions are available in the UK but there is no clinical evidence at all for any lasting benefit from these infusions so they have to be repeated regularly.

I just don't want anyone else in the UK to have the wrong information about SCS availability.
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