Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-25-2015, 09:40 AM #2
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Littlepaw Littlepaw is offline
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Littlepaw Littlepaw is offline
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Join Date: Nov 2014
Posts: 1,537
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Welcome Leggies,

I am so sorry to hear of everything you are going through and at such a young age. It is just terrible what has happened to you. You will find support and companionship here. You are not alone.

I always recommend Dr. Pradeep Chopra's video "CRPS Diagnosis and Management". It is on YouTube or will come up if you Google it. He gives a two hour talk, loads of info on treatments, supplements, therapies. He is very knowledgable and non-doomsday.

I am currently receiving ketamine. My doctor uses a very different protocol from the four hour infusions over five days. He uses a sub-Anasthesia dose of 1mg per kg. We started at half that to make sure I tolerate it well. right now I am at a dose of 0.75mg per kg. It is done in the office and takes about 1-1.5 hours. My doc often starts people at two times per week then weans down. I am going less often because my case is not as severe as some and I am little and sensitive to meds.

I have been posting my experience. I just posted this week after dose three under "Getting Ketamine Infusions". I have not felt any distress during infusions and not had any side effects other than being sleepy the same day and taking a beautiful nap. I do feel it is helping. Though it is not super-dramatic, perhaps due to the low dose, I am getting improvement.

Are you getting any support for your depression? It is very difficult going through this and coping with the loss. I found going to see a therapist who specialized in chronic pain and traumatic life change to be an immense help to me. I found her on the Psychology Today website by looking at her special interests. She helped me move through much of my despair and helped me with coping skills to handle the pain better. We used some non-talk therapy techniques including hypnosis and EMDR. Alleviating anxiety and sadness does help with pain. There are therapists who work online of going to an appointment regularly is a burden.

I will try to post some links for you later today. I read an interesting article on Ketamine used with a patient of 6years duration treated with three infusions in Houston. They had good results. It was a low dose like I get. Obviously results vary with all treatments and this was a single study so can't be extrapolated but still hopeful and interesting.

I hope you find relief soon! Sending Healing Love,
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