I finally saw a pain specialist today. He increased the neurontin to 3x daily. I was so knackered after taking the extra dose I slept all afternoon.

He said he thought pamidrondate infusions would be a good idea for me, but could not give them to me.

Then who will? My PCP won't, the rheumatologist won't and neither will the endocrinologist. Who do I call? There must be someone in the big hospital who could help me.

The pain specialist would not give me Savella, until I reach the optimum dose of neurontin, which means a two week wait.

The packet of naltrexone pills arrived today, but I can't start LDN therapy until I figure out the neurontin.

The pain is so terrible. I am not sure how much more of this I can take.

The only good thing is I found that scotch tape helped to heal the deep sores on my CRPS leg in a week. It was amazing.

Maybe work backwards. You could try calling a coordinator for the infusion clinic at the hospital and any local independent infusion clinics. They might be able to tell you who in your area is prescribing pamidronate. If that doesn't get you anywhere throw it back in the doc's court. It's their idea. They've got to know someone or can make inquiries of colleagues. Doctors are always calling on each other for stuff. Somebody knows somebody that can help.

Is there a neridronate trial location near you?

Hang in there. It takes time to adjust to med changes. If you are too zonked on 3x a day neurontin then move to 2x first. It sounds like you have help in the works and that is a good thing. It just never seems to come as fast we could use it!

What is the scotch tape magic you used?

Sending hugs,

Thank you I will call the hospital to ask for help.

Regarding the Scotch Tape.

Several years ago I had horrible sores on my leg that would not heal. My doctor decided it was folliculitis and treated me with laser hair removal which mostly worked, except for a few recalcitrant areas. I read about occlusion therapy, which is essentially covering the sores. I used scotch tape on mine for four or five hours, removed the tape and then replaced it. It was miraculous, within a few weeks deep sores that I had for months healed without scarring. BTW there is an RX occlusion tape, cordran, it is expensive.

I also had success curing severe dry skin on my leg by wrapping it with Saran Wrap, held in place by a knee high.

On my RSD leg I had several small, but deep sores that were getting worse. Nothing I put on them helped, so I tried the scotch tape cure again and it worked beautifully.