Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-29-2015, 12:17 AM #3
gigicnm gigicnm is offline
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Join Date: Sep 2014
Location: Massachusetts
Posts: 55
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gigicnm gigicnm is offline
Junior Member
 
Join Date: Sep 2014
Location: Massachusetts
Posts: 55
10 yr Member
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I totally feel for you. My children are older (14 and my "little one" will be 12 in a few days), but one day a week I take care of my 14 month old nephew. I've been doing this since he was 3 months old. I love him dearly, but it is really hard on me. I pay for it the next day and sometimes for a few days afterwards.

I can't imagine having to do it every day. Though you see their beautiful little faces and you want to give them the world. What I have learned is that they just want your time. If that means an hour outside for a "picnic" great. If all you can manage for the day is snuggle time on the couch, then that is good too. My nephew is just happy to have my attention.

I've also learned that if I have my mother or son with me I make it very clear to them if I'm struggling that day and let them know exactly what I need from them (push the stroller, take the baby out of the car, etc).

My husband constantly reminds me that he is not a mindreader and to tell him exactly what I need. People are willing to help, you just need to let them know exactly how to help.

Maybe next time someone can push the stroller and you can use your walker.

We all over do it from time to time. When you're in the middle of a flare it feels like it will never end. I wish flares had an expiration date, "I will end next Tuesday at 4pm." I feel like I could cope better if I knew how long I had to put up with it. It will end. Treat yourself well. Ask for help. Vent here anytime
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