Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-08-2015, 09:50 AM #12
Always_Believe Always_Believe is offline
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Join Date: Jan 2015
Location: IL
Posts: 279
10 yr Member
Always_Believe Always_Believe is offline
Member
 
Join Date: Jan 2015
Location: IL
Posts: 279
10 yr Member
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Quote:
Originally Posted by RSD ME View Post
it takes time to get to know how to understand and manage your rsd pain. be patient with yourself and take it a day at a time because each day with rsd is different so you won't know what you can do each day until it gets here. i learned that overdoing it on a day that i'm having a low pain day isn't always good because i pay for it with horrible flares for days after. so i try to pace myself even on low pain days as well as high pain days. in time you will learn how to avoid flares to a certain extent. sometimes flares happen even when you don't overdue it. weather can cause flares, rsd spread can cause flares and getting other diseases due to our weakened immune systems from rsd can cause flares too i.e. fibromyalgia, arthritis, osteoperosis. when flares happen that are out of your control. continue taking the pain meds your dr prescribe and have an emergency rsd flare kit. mine includes heating pad or blanket, lavendar epsom salt baths, tea, cookies, a comedy on tv for distraction while i lie down to rest until the flare passes.
So far I don't have any pain meds prescribed. Going through the "No, I'm not an addict/drug seeker" trials with new PCP, neuro, PM. Well, PCP isn't really new new - I have only been seeing her since Feb. She diagnosed RSD but she 'doesn't prescribe narcotics'.

I have a heating pad next to my bed & 2 of them next to my couch. I also have a butterfly shaped pillow that works great under my ankle, a drawer full of super soft fuzzy socks, epsom salt lotion and my laptop for my er/flare kit...lol
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