Hummerfriend,


Thank you for your post. So many of us have similar stories, we know there is something very wrong, but no one listens to us until we are at the chronic stage.

Could you share the supplements you use?

I am going to research the difference between garabentin and dibenzyline. I am taking the former and LDN, a combination I hope will help me, but if dibenzyline has better properties to help I am interested.

My leg is atrophied to the bone, too. I can't bear to look at my legs, they are slightly swollen at the ankles and my calf definition is gone. I have a big egg sized lump on the CRPS ankle. The PT says it is swelling, but I think it is something else. I have had stomach problems since this started.

Could you share your exercise protocol? I have been on crutches since March. I started PT and started taking LDN two weeks ago. It is too early to tell if it is helping me, but my husband thinks it is, because I just started being able to walk up the stairs almost normally, holding on to both railings. I had been sitting dragging myself up and down. Also my RSD foot is a few degrees warmer than my non-RSD foot.