Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-02-2015, 04:00 AM #11
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Catra, Is there anything you enjoy doing during "down time" that will distract you and allow your body to recover? Maybe reading a book in a warm tub? Calling your gfs with a hands free headset?

If you need to go to the doc or the ER, then GO! You know your own body.

One last thing, I had problems for years taking a shower. I actually used to sit on the floor to get as far away as possible from the spray. When I moved I installed an inexpensive Delta In2ition showerhead and it is so much gentler than anything else I've tried. It's essentially a big ring with a handheld sprayer inside that can be turned off if you wish.
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Old 08-02-2015, 07:06 AM #12
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Hi Catra,

I second Dave and Lit Love on getting checked out if you don't feel any better. You could try an urgent care center if you don't want to go to the ER. LL is right, you know your body. Remember when you went to the ER for the belly pain and it wasn't CRPS at all?

Take care of yourself and be well.
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Old 08-03-2015, 10:15 PM #13
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I am so incredibly sorry for the pain you are in. I cannot imagine having this disease more widespread in my own body. It seems impossible for those who don't have RSD to understand just how hard each.and.every.little.thing. is for us. I hate that you had to suffer that chain if unfortunate events. Last night a woman touched my arm behind mt elbow too and I almost started to cry right there. From that I had so many residual effects not allowing my day to become much of anything.

The fact that you have RSD and are a mom and work while in so much pain but keep pushing on shows how strong you are. There is no way you can go on not having bad days. Please keep your spirits up you can do this. Take it easy on yourself, try to make it through today. You are a superwoman! Thoughts and prayers are with you.

Much love is sent to you.
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Old 08-05-2015, 08:56 AM #14
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Thanks everyone for your kind words and support. This was one of the worst and longest flares I've had in a while...but I am now out of it for about 2 days and hopefully I won't see another one for a while. I can't tell you how much it helps just to have a place where people really understand what I am going through. It's been difficult adjusting my routines now that I have the baby...life is all about HER routines now. I have to find that balance again between work and my home life so that I can still take care of my health. I have all the faith in the world that I will find that balance...but it takes time...and in the mean time I will have bad days and rough patches. I appreciate you guys and your support so much as I struggle through this.
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Old 08-05-2015, 03:48 PM #15
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hi catra. i'm so glad you're flare has passed. just try to take it one day at a time and go easy on yourself. you are doing an amazing job taking care of your babies and deserve to take a break sometimes and rest. just always remember how awesome you are. you do so much as well as deal with the constant pain that rsd brings and i really admire you. soft hugs my friend.
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