[cgirl78971]

Hi my name is Megan I'm 18 and I've had CRPS for little over a year and a half and I'm still learning it is forever changing. But in the fall I leave for Clemson University and I'm really nervous about how my diseases going to handle that I was just wondering if anybody had any tips that I've gone through school or just someone to talk to who was in school now who understands with having this crazy disease.
Sorry for the typos I'm in the middle of a flareup so my hands are cooperating all the way!


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[Littlepaw]

Hi Megan,

I am so sorry you had to come and find us but welcome! This is a great place for sharing and support. We do have some college students as members who will hopefully be along soon.

If you haven't already, get in touch with your colleges Office for Students with Disabilities and meet with a counselor about what they can offer you in the way of accomodations should you need them. A little flexibility on assignment due dates may be of help should CRPS flares get in the way of your completing something on time. There are a lot of things they can offer you.

So exciting for you starting college! I wish you all the best in your new ventures. You have bright days ahead. Come here when you have questions or need support. Or just to check in and say hi sometimes.

Sending healing love,

[cgirl78971]

Thank you so much! I will keep this all in mind! ️


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[RSD ME]

hi cgirl. i'm so sorry you have rsd but am happy you are going to college. how exciting! i think the advice littlepaw gave you was excellent. and also just make sure you don't overdue things too. with rsd you need to learn how to pace yourself. i'm sure you'll do great in college. soft hugs!

[RSD31]

When I went I use a small tape recorder when I had flair up when I could not write my notes that way I did not miss anything in an it was a big help.

[ali12]

Hi Megan,

Sorry to hear that you have RSD but well done you for going to college and not letting it affect your career goals! SO good for you and an inspiration to others!

I'm 20 and also have RSD and I am studying Psychology at college. i'm not sure how things work in the US as I am in England but I agree with what the others have said about speaking to your lecturers / Disability Support to see what additional help you can get. This has really helped me and has enabled me to get 20% extra time during exams for my memory loss / concentration issues. I also have someone who can write or take notes for me during lectures when I am unable to and have elevator passes etc.

Another thing that may help with the RSD in your hands and typing is a computer software called Dragon Software. I use it and it has really helped me, I simply just talk to the computer and it types what I am saying.

A voice recorder is also a good idea. I have one and use it to record what lecturers are saying incase I forget.

If you need someone to talk to who understands what it is like balancing college and RSD, feel free to talk to me. I'm happy to give you any advice where I can.

Most of all, congrats on getting in and have fun!!

[Leggiesmcb]

Hi Megan!!

I admit I am glad to see you on here, yet I am sad you have to be on here. I got RSD at 19 and I found it is so hard to even explain it to my peers, so them understanding is a whole different ball game. I was in college at the time my RSD began. I ended up stopping for a semester as I was working full time and had so many medical appiintments/pain etc. Along with a surgery I couldn't handle it all. I am just now going back this fall after my 1 aND a half year hiatus dealing with my medical issues.all I would say is I was so discouraged about having to drop out a semester and now being so far behind but you know what I cannot even compare myself because this disease has changed my life. Don't push yourself too mych. Take it easy your first semester. Ease into things, take enough classes but don't pack yours schedule. Talk to college disability services. I have a meeting Friday and I will let you know what sort of accommodations I get from my school. They will most certainly give you support. Don't pus h yourself to go and see and do too mych. Make sure you stay online to talk ic you are having bad days or just need to relate. I am here as a peer I would love to be in contact and see how you are making out. Remember people just don't get this so don't be discouraged . Try to find and make good friends who are the kind who will just sit in your doom and hang out on a Friday night and order pizza. Please if you are having a tough day talk on here it can be so frustrating so we are here for you when you need us. Honestly disability services is something I would make an appointment to meet with someone. Really just take enough classes to fill your schedule but please even if you think you can do more classes just let yourself adjust . You are in my thoughts and prayers. Keep looking up, I know you will find help along the way and I will pray for all that lies ahead of you.

All my best,

LeggiesMcB

[Leggiesmcb]

Whoops one more thing and I just read it above but having a dragon changed my life. I also have carpal tunnel so you can speak and train your dragon and by golly it is a life saver! Would recommend it 100%