Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 08-07-2015, 03:21 AM #1
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default Up All Nite In Pain

hi all. i was just wondering if anyone else was up. i have had a bad flare all nite from my rsd and can't sleep because of the pain. i'm so tired. i hope everyone else is having a better nite or i should say better morning at this point. i guess i'll try to lie down again. hope you all have a low pain day.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (08-09-2015), DejaVu (08-08-2015), Enna70 (08-07-2015), Lara (08-07-2015), St George 2013 (08-07-2015)
Old 08-07-2015, 03:28 AM #2
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 11,026
15 yr Member
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 11,026
15 yr Member
Default

I'm very sorry you can't sleep because of the pain and I'm hoping you feel a lot better when you wake up. sending gentle
Lara is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (08-08-2015), RSD ME (08-07-2015), St George 2013 (08-07-2015)
Old 08-07-2015, 07:27 AM #3
Enna70 Enna70 is offline
Member
 
Join Date: Jan 2015
Posts: 442
10 yr Member
Enna70 Enna70 is offline
Member
 
Join Date: Jan 2015
Posts: 442
10 yr Member
Default

You know that's the second thing my medication concerning CRPS 2 does...help me sleep.
How very sorry for your bad night. It makes forva miserable day with stress if you will be able to sleep the following nights.
Thanks for sharing, know you are not alone.
Enna70 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (08-08-2015), RSD ME (08-07-2015)
Old 08-07-2015, 07:42 AM #4
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
Default

RSD,

How awful. I hope you sleep today.

When I am exhausted, but cannot seem to rest I find the best thing for me to do is watch TV. There are certain shows that knock me out, like The Tudors, even when I am interested in the storyline. If you can find something that interests you, but is boring, you might find it relaxes you into sleep. Also I forced myself not to use my bed for anything but sleeping.

I overdid it at PT on Wednesday morning and suffered a wringing pain in both legs afterward. It was horrendous, because it ruined my sleep. The only things that helped were heating pads, an electric blanket and TV in my Livingroom. It has been hell dealing with RSD without pain meds. Right now I am having burning, flushing in both hands and arms, as well as in my face. I have been off the nortriptyline for 6 days so I am worried that it isn't the nortriptyline causing this, but maybe the RSD has spread.

I am investigating kratom, but I am hesitant to buy it until I know for certain it does not interact with LDN. Have you tried kratom? The many reports that it helps with pain give me hope.

Did you get a chance to watch the Wim Hof video I posted?
BioBased is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (08-08-2015), RSD ME (08-07-2015)
Old 08-07-2015, 09:05 AM #5
Wiix's Avatar
Wiix Wiix is offline
Grand Magnate
 
Join Date: Apr 2007
Location: The "X" is silent. Pronounced "Oui".
Posts: 3,578
15 yr Member
Wiix Wiix is offline
Grand Magnate
Wiix's Avatar
 
Join Date: Apr 2007
Location: The "X" is silent. Pronounced "Oui".
Posts: 3,578
15 yr Member
Crazy

When I can't sleep it helps if I get up for a while. That makes me sleepy. So I go back to bed, flop around for a while, get up again, go back to bed, eat something, have some tea, watch tv...eventually I do fall back to sleep and sleep all day. Not sleeping really messes up your life.
Wiix is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (08-08-2015), RSD ME (08-07-2015)
Old 08-07-2015, 09:29 AM #6
cgirl78971's Avatar
cgirl78971 cgirl78971 is offline
New Member
 
Join Date: Aug 2015
Posts: 4
8 yr Member
cgirl78971 cgirl78971 is offline
New Member
cgirl78971's Avatar
 
Join Date: Aug 2015
Posts: 4
8 yr Member
Default

I had that problem for a very long time! If you can ask your doctor about Ambian, I only take it when needed because it's very addicting but it helps so much! Also try Melatonin it's a natural sleep aid! I'm so sorry to hear that
cgirl78971 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (08-08-2015), RSD ME (08-07-2015)
Old 08-07-2015, 10:59 AM #7
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

thank you all so much for your kind words. i had a rough nite/morning but finally fell asleep around 6 a.m. i'm feeling a little better though. i still have pain but the flare is over so that's a relief. i hope you all have a pain free as possible day today. thank you again for caring so much. it gives me the strength to keep fighting this monster called rsd. soft hugs to all.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (08-08-2015), Lara (08-07-2015), Wiix (08-07-2015)
Old 08-07-2015, 12:27 PM #8
uglogirl's Avatar
uglogirl uglogirl is offline
Member
 
Join Date: Jan 2014
Location: Ohio
Posts: 195
10 yr Member
uglogirl uglogirl is offline
Member
uglogirl's Avatar
 
Join Date: Jan 2014
Location: Ohio
Posts: 195
10 yr Member
Angry

Quote:
Originally Posted by RSD ME View Post
hi all. i was just wondering if anyone else was up. i have had a bad flare all nite from my rsd and can't sleep because of the pain. i'm so tired. i hope everyone else is having a better nite or i should say better morning at this point. i guess i'll try to lie down again. hope you all have a low pain day.
Those are the worst. What do you do to calm it down.i will walk a little, rub my feet, tak e a couple Motrin and put me feet in a bag of ice ...
uglogirl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (08-08-2015), RSD ME (08-07-2015)
Old 08-07-2015, 01:44 PM #9
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

when i have rsd flares uglogirl, i try to lie down, use heating pad and have a cup of chamomille tea. but nothing was helping last nite. i just had to wait for it to pass. i tried stretching a little and that helped a little. as for ice i never use it because my dr said ice was not good for rsd. it can cause further damage of the nerves. if i were you i would check with your dr before using anymore ice. thanks for all of your kind thoughts. hugs.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (08-08-2015)
Old 08-07-2015, 02:21 PM #10
Wiix's Avatar
Wiix Wiix is offline
Grand Magnate
 
Join Date: Apr 2007
Location: The "X" is silent. Pronounced "Oui".
Posts: 3,578
15 yr Member
Wiix Wiix is offline
Grand Magnate
Wiix's Avatar
 
Join Date: Apr 2007
Location: The "X" is silent. Pronounced "Oui".
Posts: 3,578
15 yr Member
Shocked

Man! The things we mortals have to put up with!
Wiix is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (08-07-2015), DejaVu (08-08-2015), Enna70 (08-07-2015), RSD ME (08-07-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Late nite/early AM barbo Survivors of Suicide 19 03-22-2009 01:58 PM
I need advice? Nite guard help dahlek Dentistry & Dental Issues 1 10-07-2008 06:00 PM
Another fun nite in the ED eeyore2 Myasthenia Gravis 9 07-20-2008 09:19 PM
5 Course Dinner for 18 Last Nite - I'm Dead! nide44 Peripheral Neuropathy 14 04-22-2008 03:07 PM


All times are GMT -5. The time now is 06:46 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.