Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-07-2015, 07:43 AM #1
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Default Blood pressure

Okay, I have a question about blood pressure. I wake up with numb hands. I awake w poor circulation.... So I went back to my stretches and I had a fluttering in my ear which led to headache.
I spoke with my mother in-law, nurse. She told me to get a home bp monitor.
Results... When I wake up my bp is elevated. By am and sitting up it goes down. I did stretches the following am after sitting up a bit and my bp spiked.
I've noted, if I have a bad circulation night my bp is up and it takes more than just sitting up for it to come back.
Layman research; ldn can either elevate or bring down bp and autonomic neuropathy can be the culprit. Or I am just climbing the age ladder
I had to take a break from the cuff....spreading crps
Any input greatly appreciated.
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Old 08-07-2015, 09:58 AM #2
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I think you should keep a daily log of pressures during the day, and not just the morning ones.

Morning pressures tend to be the highest of the day. This is due to the dawn phenomenon which secretes cortisol to get you going,(and raises blood sugar)
Morning is the most common time for heart attacks and strokes, please read this:
http://www.webmd.com/heart-disease/n...ow-bodys-clock

There are many factors that will alter blood pressure readings temporarily. After a large meal, hot showers or baths, even taking a reading with a very full bladder can elevate the numbers somewhat. If you keep a log for about a month, 10 or so readings a day, you will find out your own rhythms.

Numb arms from sleeping suggest low blood sugar upon awakening. If this goes away with eating something I'd think of that as your trigger.
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Old 08-07-2015, 11:10 AM #3
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hi enna. i'm so sorry you are having trouble with your hands and bp. i had rsd start in my wrist and hand and spread to other hand and feet, stomach and mouth over the course of five years. after four years i started waking up to occasional numbness in my hands and pins and needles that my pm dr said could be because of rsd flaring up. not much he could do but increase my gabapentin which helped a little. i also keep tabs on my bp and have had it spike at times but saw a cardiologist who did a bunch of tests and determined it was stress that was causing it. that's not to say rsd can't cause rapid heart beats but in this instance it was stress. i'm not a dr but if i were you i would maybe see a cardiologist just to get an ekg just to put your mind at ease. and let you gp and pm dr know about the pins and needles and numbness just to make sure it's rsd and not something else like diabetes. i also got bloodwork to rule out diabetes. whatever it is i'm sure you'll be okay. my guess is it's the rsd jumping around to other limbs but check with a dr to make sure. i also have tinnitus (ringing in the ear) in my right ear that i've had for about a year. rsd can sometimes trigger that too. gp and pm said not much they can do for that. just have to grin and bear it. it affects my balance too so walking with a cane helps me to not worry as much about falling. maybe the rsd is causing your fluttering in the ears and headaches. i know rsd can cause cluster headaches, but would check with your gp to make sure your ears are not having these symptoms for another reason. i hope you feel better soon my friend. just try to stay as calm as you can though i know it's hard and take it a day at a time. sending healing thoughts and hugs your way.
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Old 08-07-2015, 01:08 PM #4
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Rsd n mrs d thanks so much. I didn't know half of what you all shared.
I will continue w my log. I took a warm shower and bp didn't go down but I felt better. Now I know.
The numbness is due to spreeding crps and slight compression in my neck.
What is worring me is my laying down for am stretches increases bp. Is that normal?
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Old 08-07-2015, 01:41 PM #5
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i don't know if that is normal or not enna. if i were you i would ask you gp and cardiologist about it to make sure. and keeping a log of your bp is a really great idea too. hope you feel better soon. just try to not stress as much as possible. soft hugs.
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Old 08-07-2015, 02:47 PM #6
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I don't have a gp and my neurologist isn't for a few months. So the log and advice here is helping the stress.
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Old 08-07-2015, 03:33 PM #7
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enna, if i were you i would find a gp just for general checkups and flu season and would also get a pain management dr who knows how to treat rsd to help you manage your pain and stress better. a neurologist is good to have too, but after diagnosing the rsd and trying to initially treat it they usually refer the patient to a pm dr to manage chronic rsd pain. i never had a cardiologist either until i got rsd and found out it could cause rapid heart beats and i get an ekg done about every six months from my gp just to make sure my heart is beating properly. i've had heart problems (irregular heartbeats) but my gp and cardiologist said it was due to stress. i am not a dr so i don't want to tell you the the wrong thing or scare you. all i'm saying is that having a gp and cardio doc check my heart gave me one less thing to worry about which made me breath a little easier. i just thought that might put your mind at ease too. i hope you do feel better soon. remember just take it a day at a time. also having a good dentist is important too. the meds and rsd can sometimes cause dry mouth and bone thinning which may cause one to need to see the dentist more. and if you see a dentitst you may want to make sure they are aware you have rsd so they can treat you properly. having the support of the amazing people on this forum is priceless too. i couldn't get through my painful rsd days as well without all of you. soft hugs my friend.
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Old 08-07-2015, 03:39 PM #8
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Thanks for the fyi and soft hug. I haven't been very fortunate finding GP. Most have rejected me because I have a pre-existing condition.
Your advice about having regular ekg sounds really good. Especially w this new symptom of bp. I already have a sm issue of blood flowing back out of the heart so thanks again.
Your food for thought is very appreciated.
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