Swimtime, I fully understand why you want/need the research in hand. I am looking for same in dentistry....Wish your son the best and you find what you need.

During a major flareup of CRPS II I was able to show the doctors under thermal imaging exactly what I was feeling, but they didn't believe me until they saw it with their own eyes.

My body was rejecting the device which was showing up highlighted on the screens and once they removed it the next imaging a few months later showed only slight difference from a non CRPS patient no more brightness from that specific area.

I too can no longer have any surgeries unless life threatening due to my body swelling too much for stitches. Had open wound for over four months & was extremely lucky no infection from it.

At one point in time the NIH website included what doctors should do pre-surgery as well as post-op to keep the CRPS from spreading, but I have not located it on their site again. I do have a copy I've given to my doctors I would be willing to give you as soon as I can locate it.

I wish you & your son all the best and hope he gets relief soon.

Gentle hugs

I will try to get all the right links in here...

There are several preset protocols for gabapentin used at Stanford for different surgeries.
http://ether.stanford.edu/tha_regional.html


Here is a good technical article - the section on optimal peri-operative dosing is the most concise to take with you.
http://anesthesiology.pubs.asahq.org...icleid=1918108

On using minocycline
http://www.ncbi.nlm.nih.gov/pubmed/18952075

Hope this helps!

When my ortho consulted with my pain management doctor about the possibility of a second knee surgery to remove hardware my pain doctor told ortho that the best anesthesia route would be a spinal block to put All those nerves to sleep, and instead of the old school femoral artery block, there's a new 48 hour block (or an injection...? I'll have to find out the name) that the FDA just approved for surgery of this kind that can be used and the combination of both have a good chance of preventing the spread of RSD and preventing current RSD from further spread. Definitely warming up the IV bags is a great idea as is getting a spinal or epidural block for anesthesia, as is highly reduces the chances of aggravating current RSD and preventing any further spread.

Thanks everyone for all the great info! I'll let you know what they decide they can give him. Some things are handled differently due to the fact that he's still technically pediatric, even though an adult size/weight.

AlaskanLady, did the CRPS go into remission after that? This is what we're hoping. He's made so much progress but still is so limited in what he can do. The doctors suspect the hardware has a lot to do with it.

Thanks for your feedback!

Good afternoon Swim,

I have CRPS II, as well, and have had several successful surgeries (colonoscopy, endoscopy, bone marrow biopsy, gall bladder removed and a duodejunostomy-which was a very intensive surgery where they had to re-route my stomach to my intestines). The key was that my PM advised the anesthesiologist to use ketamine and the amount needed for each of these surgeries. Luckily, (knock on wood), I did not have any spreads. Recovery was hell, but I made it through.

Here is a supporting article: http://rsds.org/wp-content/uploads/2...e-pain-mgt.pdf

Good luck and God bless!