Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-21-2015, 12:33 PM #25
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
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Quote:
Originally Posted by PurpleFoot721 View Post
Thank you everybody who has posted so far on this thread, and in advance for those who intend to post.

Lit Love, I was hoping you would chime in here. Since Littlepaw mentioned your positive response to blocks, I spent several hours yesterday trying to look through your posts and replies to others to find how they have helped you. With such an overwhelming number of posts I was unable to find anything other than your response to Ketamine and HBOT, neither of which have been brought up yet with any of my doctors. I'm glad that you have been successful at regaining your life back, for the most part. It's always nice to hear others success stories.

I have always been good at meditation. I have used this quite often to block out noise, pain, fear, nerves and many other negative issues many times throughout my life. I have never heard of the RSD diet other than the recommendations of Dr. Hooshmand talking about the 4 f's. When my dad was misdiagnosed with having MS years ago, I learned the importance of a healthy diet when you have a condition relating to the CNS. I continue to eat a fairly healthy diet, by no means Paleolithic, but being somebody who loves to cook, I have always done my best to use only fresh ingredients, fresh fruits, vegetables, herbs, and meats, (usually chicken breast, fish and pork on occasion). I tend to stay away from processed foods, but sometimes find them convenient when time is limited or I am not feeling well and rarely do I use dairy. My husband, who has been doing most of the cooking lately does the same. I have been drinking 1-2 glasses of fresh squeezed orange juice daily but I know I could use more vitamin c. I understand that it does wonders for us.

Since I am rambling and getting off topic, I will get back to the purpose of this thread...

I am glad that the blocks do help some people and as I have mentioned earlier on in this thread, I am starting to think that they may be worth a try. At least to attempt to recover my leg strength and get off of the crutches. I know that they wont do anything for the other areas that have been affected by this, only the original limb.

Let me ask this - What's the worst that could happen? Somebody please answer that. I really do have no idea and can't seem to find any answers to that. I have no known allergies, but I have been prone to having issues with bleeding following surgical procedures though. With the last two surgeries, one I nearly bled to death in the hospital when a couple of stitches let loose late at night leaving me very anemic even 2 months post surgery. The most recent I bled enough that they had to change the splint before releasing me. The surgeon put on a compression splint to stop the bleeding, which in my opinion is why I ended up on this forum. This is the reason why I would like to know the possible complications that result from having a LSB done. I seem to be a fairly unlucky person when it comes to any type of procedure being done. I would also like to hear the results of others who have had a block done to know if they work or not.
I am one of the unlucky few who experienced spread after a block. I knew it was a risk but my dr talked me into taking the chance. On the one hand I wish I had not given in because I went from having RSD in my left ankle to having it almost full body after theblock. But I knew the risk going in and was willing to accept that things could get worse. I also know now that even minimally invasive procedures can cause spread for me so I need to stay away from them. A learning experience...but life goes on. The blocks won't kill you and honestly the chance of spread is small.
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"Thanks for this!" says:
Enna70 (09-21-2015), Littlepaw (09-21-2015), mama mac (09-21-2015), PurpleFoot721 (09-21-2015)
 


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