well i went back to my dr yesterday because the uti (e-coli) i had treated with antibiotics a few weeks ago starting acting up again. my gp said to see my ob/gyn so i did and they said that they will take another urine culture but think that i may have intestinal cystitis (sp?). i don't feel as bad as i initially did with my uti but still have pain in my stomach and pain in the area that my bladder is in. so if the urine culture shows no more infection then i have to go see a dr who can diagnose and treat intestinal cycstitis.

i was just wondering if anyone else has this along with rsd and how does it get diagnosed and treated. i've read in the past posts of people with rsd who got ic but it was a while ago. i also wonder if there is a connection with rsd and ic. i googled ic and it says that it can occure when someone has a chronic pain illness like fibromyalgia but did not mention rsd though as we all well know is a chronic pain condition too. i got a little info ic but like to hear others experiences with it so i can compare notes. thanks and wishing you all a low pain day.

p.s. sorry if this is tmi.

Don't be. How else will we be able to help and learn?. Thanks

I have IC but got it decades before the RSD. It gets better and worse over the years.

If CRPS can involve any organ, why not the bladder?

https://www.inspire.com/groups/inter...pain-with-ldn/

However, with E. coli recurring, you might try using d mannose prophylactically. I use the NOW powder.

thanks everyone for your support and great advice. and thanks for the link bio. i will talk to my dr about ldn when i see him for a med check next week. hope everyone has a low to no pain night. hugs to all.

Sorry to hear the discomfort came back. Definitely re-culture. If it's a resistant bug or even just a bad infection it may not have cleared and you don't want it creeping up into the kidneys from the bladder. Let us know what they find. I hope it's something easily treatable!

rest well,

I think you mean interstitial cystitis. I would wait to see what your reculture results are before you dive into an IC diagnosis. Though cases of IC may feel like a UTI (along with a host of other symptoms), IC sufferers don't generally have positive UTI cultures.

While IC sufferers have a higher incidence of conditions like endometriosis, fibromyalgia, and other chronic conditions I have never seen a connection to CRPS.

IC is usually diagnosed by a urologist or urogynecologist.

I have found in my practice that sometimes it takes the bladder a while to settle down after a UTI. Avoid acidic foods (like cranberry or orange juice). Sometimes an antacid (ie. Tums) several times per day can help.

thanks for all of your great advice. i have had endometriosis too and am concerned that that is back again. already went through two major surgeries for that and the pain i have feels similar to that but when i mentioned it to drs they didn't think it was what i had. and yesterdays pain was the worst ever. it was as close to a ten as you can get and it made my rsd flare up. lasted all day but today it seems a little better but i am very nauseas today. i my have to go back to my endo surgeon and see what he thinks. i'm due for a yearly check up with him anyway. thanks again for all of your help. wishing you all a painfree as possible day today.