Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-26-2015, 03:46 PM #5
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Littlepaw Littlepaw is offline
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Littlepaw Littlepaw is offline
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Join Date: Nov 2014
Posts: 1,537
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Your poor sweet brother! If only Love and money could fix the problem!

I think your doctor's appointment should be just for you. Your time with him is about your care and your care relationship with him is new. I would ask him at the next appointment if you can schedule time with him and your family for treatment planning, family education, etc. You want to keep him in the loop on this and not blindside him. Concerns that your appointment will get hijacked are legitimate. It WILL.

Is your brother open to looking at research? There is a lot of great academic info out there from major research centers that might help him understand this. I know for some (self included ) having the science behind something goes a long way.

You must be exhausted after that phone call. I am glad you have so much support and love around you. I am sure there were things said that were upsetting but it sounds like your brother is so desperate for you to be better and not handling it well at all. It just makes one heart break all around.

Sending extra hugs,
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Enna70 (09-26-2015), PurpleFoot721 (09-26-2015), RSD ME (09-26-2015), stillsmiling (09-26-2015)
 


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