Hey Jeannie,

I guess a more real set of words would be "normal" days and "horrendous" days - but to make it sound positive it's better to go for good days and bad days and is so much more socially acceptable (friends always ask if it's a good day, never a normal day!!!!)

I guess for me a "good" day has me sitting up for most of it, being able to go out of the house, spend time outside even though I am shattered and my pain is horrible, whereas a bad day I feel like I've been smacked round the head with a saucepan, got a hangover, can barely think from pain and fatigue and other RSD symptoms appear far worse, on days like these even sitting up for 10 minutes can drain me for the rest of the day pain wise and I would find it hard to impossible to go out and do things.

I hope this is some help! I wish good days were pain free - but they are just a day when you can do more and the pain is not destroying your life as much, but never gone.

Love

Frogga xxxxxxxxx

What I call is a good day is: Wait I don't have any. LOL

I have days where I make myself do what has to be done. I have days where I will do things with the boys but again, I have to make myself do it.
'
I was just sitting here thinking how frustrating it is that I can't live a normal life like any other person. I am so stressed from dealing with things that come up that Bill would have taken care of.

I'm frustrated because I have this VNS in me messing with my voice and breathing but not doing a damn thing for my depression.

I forgot to take my Methadone so now I am in full blown pain.

I never know what day or date it is. I embarrass myself by doing things that make me look stupid.

My heels are hurting because I have been on my feet too much today. Don't know what is going on there.

I don't think I honestly have a good day. What I do is make the best out of the day that I can. That's like sitting on a granade while it goes off and trying to stay in one piece.

I don't have a day where I am not in pain somewhere due to all of the medical problems I have. My Dr. is always telling me to take them one day at a time. It's easier said then done. I know he's having major medical problems or I would give him heck for saying that to me.

If I'm not dealing with the RSD, then it's the depression, or TOS, or CFS, or IC, or stress, or suicidal thoughts, or too many more things to name.

I would say most anyone with the RSD or even the TOS are very likely not having many if any good days.

I gues what you could call a good day for me is if I wake up and find I'm still alive and that's if I feel like I want it.

So don't feel out of place girl because I'm right there with you.

Ada

A good day for me is one where I can clean my house, do the dusting and maybe even cook dinner for my family. Some days I can do it all and some days it's just one thing or the other. If I can get up and do the laundry it's a good day. If I can lie here on the couch and surf the net without groaning, it's a good day.

My bad days are the ones where I can't do a darn thing. I lie here on the couch and the pain is so unrelenting I cry off and on. Nothing seems to help and my poor hubby can't even touch me to make me feel better. Every little noise is like a spear through every nerve ending in my body.

I notice you said that not using your leg is the only way to lessen the pain. I urge you to use your leg. Slowly and easily but use it. If you don't your chances for atrophy and frozen limbs is much greater. It may hurt but it will lessen. I had the same problem in the beginning. I couldn't use my leg without a huge amount of pain and massive swelling. I went to PT and regained the use of my leg, got off crutches and the swelling even went away. All that troubles me now is minor swelling in my ankles. I did it with no pain meds either no thanks to work comp, which is who I was dealing with then.

Hugs,

Karen

well, you know. i have honestly had really good days lately - despite the BS that is going on now.

but i say this. it is a beautiful day when:


shalom and good, sweet dreams.

angie

I call them "good" and "bad" days, too. But what I really mean when I use those polite-to-be-said-in-society words is: I am content to be alive today (or) my quality of life sucks and I wish I wasn't here anymore.

But if you come right out and say anything even remotely like that, people jump all over it. They'll say and do just about anything to get you to quit talking like that. The mere concept of euthanasia is too much for them.

I pretty much ditto this!

Love ya Sweet Heart!

Good versus Bad,
Good day: I do not cry for no reason, I can breathe through the pain which is 24/7, I can spend time with my flowers perhaps take a few photos, I can brush my cat, kiss my husband and......, hug my son, take a short walk, perhaps type for 20 mins on this site, call friends and make dinner (even though it takes me twice as long as before RSD but I do have fancy gadgets that help)

Bad day: I cry for no reason, my arms spasm & burn and I can't stop shaking them for about 1/2 an hour at a time, I am short-tempered, I sleep until noon, I sleep only 2 hours at night, I drop everything I pick up, I swear, I can't eat and I refuse to answer the phone.

That is a very short list as I am sure with everyone. We just have to remember, the our "GOOD" moments should be tucked away so that we can relive them when the "BAD" gets too much to handle.