Taking showers puts me in a flare up

89danboy · 10-06-2015, 06:57 PM

Quote:

Originally Posted by Enna70

Yes to the water temperature.... Unless it's just right, I can have a massive flare. Even if I have the temperature right and the water pump changes....then I can't warm up. Ldn keeps only most of the hot flares away....so as I am cold most of the time a warm shower does help.
Also I get very fatigued.... So rest is important....... But I also try to keep moving.....hard but I try....cooking is hard....I forget what I am doing.....so you are not alone.

How much does the LDN help you,I wanted to try it,I ordered some overseas but haven't tried it yet.i have to be off all of my methadone befor I can try it.i also have debilitating chronic fatigue.has the ldn helped that at all.life is horrible to deal with all this .i know you can relate.im also gonna order nerodronate and try that down the road,I found an Italian pharmacy that has it.im at the end of my rope,I don't want to live life if it's like this,I will try anything to get better,Drs won't try anything new.

LIT LOVE · 10-06-2015, 08:13 PM

If docs won't try anything new, then it's time to find a new doc. There some great CRPS docs in your neck of the woods. I'm blanking on the name of the one that has some good youtube videos up, hopefully someone else will remember.

Have you tried baths? I find they help me reset my temp. You might need to have a heater in the bathroom. You can have a small wall one installed, and they work well.

Does the direct spray bother you at all? Mine did until I put in a new nozzle that is the large circle type.

Enna70 · 10-07-2015, 07:27 AM

Quote:

Originally Posted by 89danboy

How much does the LDN help you,I wanted to try it,I ordered some overseas but haven't tried it yet.i have to be off all of my methadone befor I can try it.i also have debilitating chronic fatigue.has the ldn helped that at all.life is horrible to deal with all this .i know you can relate.im also gonna order nerodronate and try that down the road,I found an Italian pharmacy that has it.im at the end of my rope,I don't want to live life if it's like this,I will try anything to get better,Drs won't try anything new.

My dose is 4.5 mg. There were side effects, after three months it subsided. But for me it only mostly works on my hot flares....nothing else. And I ve developed a tic....hope this helps.

Enna70 · 10-07-2015, 07:31 AM

Bio and still.....thanks for sharing.....those are great tips. Were I am staying there is a built in heater into the bathroom....so when that out of shower chill hits, I use this fixture. And I like the idea of a towel so the shower water doesn't sting....great help

Littlepaw · 10-07-2015, 08:23 AM

I flare in the shower too. This has gone on basically since this started. The warm water combined with a dependent foot makes for a red lobster looking tootsie with a lot to say about it. Since ketamine I am able to shower at the gym right after getting out of the 82 degree pool but I don't push hot water. I have been afraid to try showering any other day. My trick is to take a bath with my CRPS foot resting on the edge of the tub out of the hot water.

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