Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-06-2015, 06:57 PM #4
89danboy 89danboy is offline
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Join Date: Jan 2012
Location: Eggharbor twp nj
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89danboy 89danboy is offline
Junior Member
 
Join Date: Jan 2012
Location: Eggharbor twp nj
Posts: 86
10 yr Member
Default Ldn

Quote:
Originally Posted by Enna70 View Post
Yes to the water temperature.... Unless it's just right, I can have a massive flare. Even if I have the temperature right and the water pump changes....then I can't warm up. Ldn keeps only most of the hot flares away....so as I am cold most of the time a warm shower does help.
Also I get very fatigued.... So rest is important....... But I also try to keep moving.....hard but I try....cooking is hard....I forget what I am doing.....so you are not alone.
How much does the LDN help you,I wanted to try it,I ordered some overseas but haven't tried it yet.i have to be off all of my methadone befor I can try it.i also have debilitating chronic fatigue.has the ldn helped that at all.life is horrible to deal with all this .i know you can relate.im also gonna order nerodronate and try that down the road,I found an Italian pharmacy that has it.im at the end of my rope,I don't want to live life if it's like this,I will try anything to get better,Drs won't try anything new.
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BioBased (10-06-2015), Enna70 (10-07-2015), PurpleFoot721 (10-07-2015), St George 2013 (10-07-2015), stillsmiling (10-06-2015)
 


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