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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Hello and Welcome Irish,
Purplefoot has beat me to it and saved me some typing. There are many wise suggestions in her post. I second keeping up as much movement as possible without flare. Working out in a pool can be extra beneficial. Any exercise will help you feel stronger and improve mood. Meds options are highly varied. If what you have isn't working or you don't like the side effect profile certainly consider changing to something else. I took neurontin for a while and found that it was contributing to depression. My mood is much better on a low dose of nortriptyline and I still get some help with nerve symptoms. The other thing that helped my depression was a therapist who focused on chronic illness, pain and trauma. She had certifications in EMDR and hypnosis which worked around the conscious part of my brain and brought about quick improvement. If you haven't watched Dr. Pradeep Chopra's video "CRPS Diagnosis and MAnagement" you will find it helpful. He is well respected, non-doomsday and gives many treatment tips. CRPS is his primary focus in practice. http://youtube.com/watch?v=3LKhOZ8mAM I also always advocate for thorough workup even if docs are telling you everything is okay. Sometimes folks have not had follow up imaging or EMG after procedures to ascertain if there is anything treatable happening. Consider alternative practices. I get some relief with acupuncture and there are many other treatment modalities to consider. Don't give up on getting relief. It just feels like it takes forever to find what works. I am sorry you had to find your way here, but you will find good support, plenty of understanding and a group to share with. Come and let us know how you're doing. Sending hugs, ![]()
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