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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-23-2015, 09:20 PM | #11 | |||
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~ No Pain is Gain ~ -Spike- |
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"Thanks for this!" says: | DejaVu (10-31-2015) |
10-25-2015, 04:22 PM | #12 | ||
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I know there are others in worse shape and I appreciate how blessed I am in many ways. But you're also allowed to feel your own personal pain, right. I'm trying so hard to deal with all this in a healthy way. I fight so hard every day to find joy and reasons to stay here. Denise |
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10-25-2015, 06:40 PM | #13 | |||
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~ No Pain is Gain ~ -Spike- |
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10-26-2015, 05:24 AM | #14 | ||
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Denise,
The emotional pain you are dealing with is enormous. I believe that stifling this pain with a veneer of positivity is not healthy. I truly believe griping and wallowing a bit, is smart emotional housecleaning. A loud scream into your pillow is wonderful therapy and having a good cry releases chemicals in your tears-the former is a scientific fact. Think of crying as a form of detoxification. One of the most "positive" people I know is a cauldron of suppressed anger, which manifests itself in rude behavior that seems innocuous, but is IMO rage leakage. I gave up on her when she chided me for being down when I could not walk, was suffering from excruciating, unremitting CRPS pain, along with an antibiotic nightmare which exacerbated a digestive disorder and simultaneously I was trying to digest the news I had a brain aneurysm which needed surgery. I had pain induced insomnia, could not eat... Once I got through the stomach issues using holistic products only then was I able to think rationally, because some pain abated and I could nap. The naps gave me enough energy to clean myself with baby wipes and brush my hair. I devoted time everyday to massaging DMSO on to my feet and legs while talking to them. I also allowed myself time to cry and scream when I was alone. It helps. |
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"Thanks for this!" says: | DejaVu (10-31-2015) |
10-26-2015, 07:10 AM | #15 | ||
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BioBased,
I must not have expressed myself very well. I fight hard to stay positive; I often don't win. I'm sad plenty. Back to the original topic, there are many positive things one can do to improve the effect of rsd on your body. I find restorative yoga and meditation helpful. |
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10-26-2015, 02:09 PM | #16 | ||
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CD,
I am sorry that you are sad and have to fight to remain positive. I hope that every day gets easier for you. |
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10-27-2015, 11:55 AM | #17 | |||
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Denise,
I think you're awesome Hope everything shifts for the better for ya just around the next bend. Thanks for being here! |
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10-28-2015, 12:34 PM | #18 | ||
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Thank you all. I didn't intend for this thread to end up about me
I'm sorry. It's a good subject. I'd still like to hear other's experiences on the original topic. Last edited by cdwall; 10-28-2015 at 01:03 PM. |
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"Thanks for this!" says: | DejaVu (10-31-2015) |
10-30-2015, 10:09 AM | #19 | ||
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It has been hard since crps is in my mouth. From not being able to chew and swallow properly.. to kinda starving myself. I did have to learn to really listen to my body....don't push. But then stretching and making myself do little things. For example half of my shake stays on counter so in order to get my full meal, I need to get up and get it. If I like to do something and find I can't any more research ways to adapt....like I can't lay on the mat to do a stretch see if there is a different approach to get same results by sitting or standing.... And keeping my mind busy. Even if its a silly distraction so I don't gowith all the pain. |
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10-30-2015, 11:01 AM | #20 | |||
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I've been all of my life. Why oh Why can't I be instead? ROFLOL
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~ No Pain is Gain ~ -Spike- |
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"Thanks for this!" says: | DejaVu (10-31-2015) |
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