Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 10-28-2015, 02:41 PM #1
Rain shower Rain shower is offline
Member
 
Join Date: Oct 2015
Location: USA
Posts: 116
8 yr Member
Rain shower Rain shower is offline
Member
 
Join Date: Oct 2015
Location: USA
Posts: 116
8 yr Member
Default My world is shrinking...

Hello all,

I have had crps since 2003 from hit and run auto accident. I have been able to "manage" the pain and work full time until this most recent work related event in March. I use the term "manage" Very loosely, as more often than not I fell into bed in terrible pain when I finally returned home. My job required travel and managing team of research professionals. I basically lived a lie and kept my worsening disease a secret from coworkers and family. My husband of course knew to the extent that I allowed him to, which was very difficult and I did my crying at night after everyone was safely sleeping.

I feel like my world is shrinking, in that I am either in bed or pacing in my room, as this pain spreads to whole body. I am seeing three MDs, two pain specialists and my primary care with whom I have worked with for many years. I have three stellate blocks scheduled in December, as this is recommended by workers comp and pain docs, to perhaps give me some relief for left arm original site of crps. They are also suggesting spinal cord stimulator, which I respectfully have declined due to all the problems this device has had. So they have suggested the new Stimwave stimulator injected via needle and has external battery, if memory serves. There is not much out there on this relatively new medical device so digging up information has been difficult.

I thank you all for sharing on this site, as you have become a trusted life line for me as my world shrinks and my depression and anxiety increases. I am using every ounce of my being to deal with the pain and other symptoms of this disease.

Take care
Rain shower is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (10-29-2015), DejaVu (10-31-2015), Enna70 (10-29-2015), Littlepaw (11-01-2015), PurpleFoot721 (10-29-2015), St George 2013 (10-28-2015)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
My world is shrinking Blessings2You The Stumble Inn 14 07-26-2011 12:28 PM
leg shrinking used to be Reflex Sympathetic Dystrophy (RSD and CRPS) 6 04-13-2007 01:21 PM


All times are GMT -5. The time now is 05:29 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.