Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-29-2007, 09:59 PM #3
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frogga frogga is offline
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Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
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Hey Mark,

So no pearly whites then?

I also have RSD face/ jaw. Very painful, especially with spasms as well. (Ness and I seem to share that sx). I find that electric toothbrushes worsen it, high acidity food, stuff that involves chewing etc etc

It is really horrible and as IHH says, the jaw dystonia is no fun either - except for weight loss! lol

Sorry I don't know any suggestions I know that before my arms totally died the dental hygienest wanted mum to brush my teeth "properly" once a week because my arms were getting to weak to be able to brush them hard enough, and apparently thought the pain was gum disease type thing. It wasn't... But, look at things like the type of toothpaste, mouthwash and toothbrush you use and see if you can get better types. I use corsodyl mouthwash, some random hippy paste (bright pink and no mint which DOES make it hurt more) and a softer brush?

You're not going mad. Well. Hopefully. Otherwise IHH and I are insane.

Love ya! hows the gout??

Froggsy xxxxxxxxxxxxxxx

PS - are you coming to mine as well? it's the plane trip of the century? You have a great choice of instruments!!
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