Oh wow.. Dawn!! yes, dear.. lovely thought.. lovely!! LOL Only in my dreams though!! I love your ocean breeze pic. (My boat would probably sink though!!) HA HA! Love ya! Desi

Howdy,

It seems that in the Pain Management Conference in Berlin that finished on June 15th there was much active discussion about CRPS 'BURNING ITSELF OUT" There is apparently sufficient data to confidently say that it does happen--
On questioning my specialist it is "when" and not "if".
Of course I am very interested to read the conference transcript before I get excited.
Take care and hugs
Tayla

I was just wondering if anyone that's been on the board ever had it to burn itself out. I haven't seen anyone around here who have had it to burnout.

I don't think mine would have ever burn out. Once it was diagnosed I found Drs. and Anesteologist to go after it aggressively but I was in so much pain for over 6 years I was suicidal from it.

I don't see many people ever say that they were suicidal from the pain but I do know we have lost several here in the group because of it.

I know around 10 people in my area with it and not one of them have had it to burnout.

I would not only want to see the transcript, I would want to meet some of the people it happened to.

Ada

Hi Ada, I'm with you on this one. Show me someone who has had their RSD "burn out. " As they say, the proof is in the pudding. As far as the transcripts go, I personally have found so many contradictions in the studys I have read that it's hard to believe any of them any more. But, if I could meet a real live person who could prove their RSD burned out, maybe then I would believe. Jeannie

Okay, let's face it ... no one really knows anything about rsd! there are such conflicting reports and articles and i believe they are all theory. this goes from how it begins and why, to how to diagnose it, to what works as treatments and meds, to how and if it progresses and travels, and if it burns out .... I would trust a dcotor more who just said ... we don't know, it is all a guess. we the patients know the most and thank God we share it.
joan

I do know a few people with CRPS who have got better, they have dropped away from going to the physio, hydrotherapy etc and on making enquiries they are better.
I think the problem is that not too many people will continue contributing to these support groups once they consider themselves as better or in remission.
Whether it is because it has "burnt itself out" or they are in remission or cured I am not sure but I am looking forward to reading the notes from this Berlin conference.
Tayla

Hi there Tayla! I know when I was in my PMD that I did ask him if this would go away.. and he did say;"yes"?? hmmm. I then said"how?" he said by eventually burning itself out..Im getting some memory back here, now LOL anyway, I said, do you mean that it will go away and not spread any further than my shoulder? he said "yes" that's right! I then said how? I know, I know.. I am so very curious. (We have to be to be heard!) He then said I have treated 100's of patients like you, that it does burn itself out! when?? he said "I can't tell you when"... but it does happen! Ok I know if I am "Cured" which In my standards mean.. "Remission" .. that I will not leave this board, as maybe, just maybe there is hope out there and if I do go into remission or "BURNED ITSELF OUT" I will be here to say how, when, where yada yada I still wound contribute to this board as I know we are "ALL" in this together through think and thin. eh? Love, Desi

I have heard all about this as well. One of my PM drs tried to reassure me (and my family) that RSD doesn't last forever. When asked why, they said how many people do you know above 60 who have RSD (ok. I know several, but I know far more people in their 30s and 40s). But, whether this is due to the suicide factor, or whether the RSD is diagnosed as a neuropathy of some kind and thus never comes under the RSD umbrella. For instance, RSD can apparently begin after a stroke - but it is known as something like post stroke syndrome or something. So maybe it doesn't burn out - the Drs just call it something else!

Interesting....

Love

Frogga xxxxxxxxx

PS - I know quite a few people who have burned out RSD and are now fine.

I've never known anybody whose RSD "burned out." However, I know many, many people who were treated and went into remission. The doctors and experts I have seen all agreed that RSD does not just go away on its own, it requires treatment to do so.

I'm sorry, but I have to believe that even if the RSD did just go away one day without treatment, it would leave behind it quite a path of destruction. Even with years of physical therapy, when my pain and vasomotor/sudomotor changes finally went into remission, it left behind damaged blood vessels, muscles, joints and bone. Imagine if a person had gone through no treatment and therapy and just waited for the RSD to magically disappear someday! No matter if the pain "burned itself out," the physical result would be absolutely devastating.

I do realize that nobody is advocating for a lack of treatment...the paragraph above is just an example of the dangers of this belief. If, for instance, a doctor believed that RSD necessitated no treatment and would go away on its own, that could be a very dangerous assumption.

I guess what I'm trying to say is that it hardly matters whether RSD goes away on its own...it needs to be treated regardless of whether or not it burns itself out.

-Betsy

Mine is in remission but only due to years of treatment. Mine would have never just burnout. I don't know of anyones who has as I said.

Like Betsy said, even if it did so call burnout what kind of damage would it leave behind without some kind of treatment/

Ada