Hi all my friends!
Ok, I do have a question. Most of you know that I went to a new pain management Dr. on Thursday. ok.. he said to me that "This RSD/ CRPS" will most likely "Burn itself out" I asked him if this will spread any further? he said no. ok.. I can read your posts, threads.. yada yada And I need to take a 'mini vacation" since it hurts so bad to type.. my fingers, wrist (inner side of my thumb (hand) is hurting, shiney and ohhhhhhhhh so ccccc..old! So, my question is; can this eventually "burn" itself out??with Physical therapy? medication's? He said the surgeon who did my carpal tunnal surgery in Jan. caught this fast and hopefully it will NOT spread. It has stayed so far in my hand, wrist, upper arm and shoulder. ok.. my hands are on fire and achey.. so taking a mini break here for a while. I will however read your posts. Love and be back soon. Love, Desi

Desi,

There are cases in which the RSD goes into remission for unknown reasons, without any treatment. It is not typical though!

I know what you mean about the hands needing a break! Come back soon and take care of yourself.

desi,
I'm sorry you are hurting so bad. I'm sending you very gentle hugs, and a super soft pair of gloves that will not touch your skin. Take as long as you need. Keep reading, and we will be talking to you. don't worry about replying. Please take care.
Mary

My RSD is pretty much in remission from blocks and Triggerpoint injections. Yesterday my right arm and hand was showing the RSD due to the weather here. I have noticed after it rains and when it starts drying up from it is when I notice mine.

I don't know about burning itself out though. I never heard of that one but I guess anything is possible. I know that before I started getting blocks mine showed no signs whatever of slowing down.

Hope you feel better soon. You have been such a great asset to the forum.

Ada

Desi,

Awww, I am going to miss all your cheerful smiley/huggy posts. But I can fully understand needing a break, too. Sometimes the pain can just be overwhelming. I'm glad to know you'll still be "lurking", and reading, though.

I now want to address what your new PM said, though. It seems to be quite inconsistent.

Quote:I asked him if this will spread any further? he said no.
2nd quote:He said the surgeon who did my carpal tunnal surgery in Jan. caught this fast and hopefully it will NOT spread.

Which is it, hon? I know how it is, to be in the dr.s office and hearing the data, but not being able to process it all at the time. You have to go home and think it all through, and ask them the next time you have an appt. I would certainly have questions for him, though... those two answers just don't go together.

I will miss you, Desi... I pray that you will feel better soon and come back to spread joy in your wake.

Hi Desi,
I will miss your post too . Your always there to add a cheerful comment to someone’s day But then there always comes a day when we all need to take that break from this old keyboard.
I am not sure if you have joined RSDSA org. http://www.rsds.org/1/membership/join.html I did and they sent me 2 journals that were full of information on RSD and some other great items such as a small rsd/crps information card that you can carry in your wallet to show health care providers etc. The reason I am mentioning this is that it answers many of the questions that we all ask when we are first diagnosed plus many others including some great research articals.
I hope that you get some rest and I look forward to seeing you post again when you’re feeling better.
Many Gentle Hugs..
Dawn
PS.. That's my Hubby

Ohhhhhhhhhh.. so sorry Rogue.. I'll blame my pain and medication's for this one.. LOL He said It will not spread any further. I told him it has spread though from my had/wrist to my entire arm/shoulder(Right) Hey, I'm suppossed to be on a "mini vacation" Love, Desi

Hi Desi,
we have not met yet over the net (sorry for the poor prose). I visit infrequently as I can only sit for short periods. I have only ever heard of burning out by orthopeadic surgeons - noone who really understands the condition.
Many of these bods - not all - practice in the dark ages of alchemy. I think they still believe they can turn a sows ear into a bar of gold......they believe they are better than the alchemists of old.......they don't even have to start with a metal. I have probably upset any genuine Orthopaedic docs out there - I am sorry but you fellows are too hard to find.
Sounds really sinical but certain medical fields have a consensus and those in orthopaedic circles are maverics if they believe CRPS is not just in the mind.
We know better.
Enjoy your break but may I suggest ever so respectfully that you try to keep using the CRPS affected part, ever so gently and carefully.
Remission that is unexplained is the only "process" I am aware of being legitimately documented but is VERY infrequent.
Some treatments will give relief to one individual and not the other.

If you are involved with an insurance situation, too much rest will be held against you also.

I send you gentle thoughts and my best hopes for remission - it does happen.
Regards
Auberon

Howdy,

It seems that in the Pain Management Conference in Berlin that finished on June 15th there was much active discussion about CRPS 'BURNING ITSELF OUT" There is apparently sufficient data to confidently say that it does happen--
On questioning my specialist it is "when" and not "if".
Of course I am very interested to read the conference transcript before I get excited.
Take care and hugs
Tayla

I was just wondering if anyone that's been on the board ever had it to burn itself out. I haven't seen anyone around here who have had it to burnout.

I don't think mine would have ever burn out. Once it was diagnosed I found Drs. and Anesteologist to go after it aggressively but I was in so much pain for over 6 years I was suicidal from it.

I don't see many people ever say that they were suicidal from the pain but I do know we have lost several here in the group because of it.

I know around 10 people in my area with it and not one of them have had it to burnout.

I would not only want to see the transcript, I would want to meet some of the people it happened to.

Ada